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huenix

Question About Results

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I hesitate to even post this because I am sure the "correct" answer is talk to my GI, but...

Two years ago I was diagnosed with GERD. Last fall, I got giardiasis from contaminated water, and after about 6 weeks of suffering finally got a positive result in testing. My regular doc (actually his PA) gave me Flagyl, and the giardiasis cleared up. In the followup appointment, the PA found occult blood in my stool, and did bloodwork.

My liver function tests were a bit high (140s for AST and ALT) and my total bili was high (I have Gilberts, or at least thats what I have been told for a couple years...) I was also mildly anemic. PA requested that I see the gastro, which I did. Gastro repeated blood tests (6 weeks or so later..) and did a RUQ sono of the liver.

Repeat bloodwork was mostly perfectly normal. Total bili was still high (1.2) and the gastro had screenings done for Hep, Celiac and some other stuff. Everything was negative except:

tTG-IgA was 14, with >8 as positive

The other AGA test was right dead in the middle of maybe. I don't have the sheet here with me so while I remember the result was inconclusive, I don't remember the range.

Last but not least, I am still anemic, even talking an iron supplement and dietary changes to increase iron consumption.

RUQ sono came back as perfectly normal.

Last week I had an Endo and Colonoscopy per the gastro. Everything was fine as far as it went with mild gastro irritation (even on Prilosec...) The biopsy report says"No flattening of the villi is observed. There is, however, a slight increase in the number of plasma cells in the core of the villi and a slight increase in the number of lymphocytes in the epithelium..." It mentions that if clinically suspected, this could represent a mild form of celiac disease and recommends seriologic testing and clinical pathological correlation.

I've had gastro discomfort for a long time and always wrote it off as GERD, Frequent mild diarrhea. Very occasional nausea.

Last but not least I should at least mention that I am somewhat of a distance runner, and I'm in overall good shape (barring the last few months due to the giardia...)

Any thoughts? Anything I should specifically talk with the GI about?

Thanks!

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Your story sounds similiar to mine and I don't see my GI doc for another two weeks.

I've also had high bilirubin, although usually around 1.2, not real high. I had some liver enzyme problems as well. My sypmtoms are stomach pain, nausea (bad sometimes), on and off diarrhea. Also had a stroke, and am a very healthy 25 year old. I just decided to give the diet a try, only on day 2 though. So while I can't offer any advice, just wanted to let you know you are not alone.


Meagan~Happy Mama to my 3 kiddos!

Had a stroke 11-16-09 as a healthy 25 year old, complete workup and found nothing! I *knew* it had to relate with my recent stomach/nausea problems, but was told no for along time. *I* pushed for Celiac testing, even when doctor doubted it.

Positive bloodwork and negative biopsy- 12-09.

HLA-DQ 2,1 (Subtype 2,6)

Neurologist concluded stroke was caused by Celiac/Gluten Sensitivity!

6-10 Tested IgE allergic to peanuts, green peas, and soybeans.

Kingston age 2 1/2 tested positive via Enterolab, tested poitive for IgA and TTG. Doing MUCH better gluten free as of 3-10.

HLA-DQ 2,3 (Subtype 2,7)

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I would start the diet. You have had a positive blood test and a endo that showed that you may be (probably are with the positive blood work) in the early stages of celiac. I would start the diet. That is the truest test. It is very common for us to have elevated liver panels, GERD and the other symptoms you are having. If you have any questions please feel free to ask and read as much as you can here.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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This biopsy finding is typical for early celiac, and the ttg test is quite specific for celiac, but may be positive in giardiasis.

But by the time it was done, it should probably have gone down.

to read more about the significance of the biopsy findings, go to Dr. Lewey's blog somewhere on his site, www.thefooddoc.com .


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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Crap. Reading all the giardia/celiac disease links just gets more confusing. I agree with you that it -should- have gone away and I certainly have had zero giardia-specific symptoms since finishing the run of Flagyl.

Whats stressing me out about all this is that I don't want this to end with "Well, we don't know what's wrong with you." Especially since, in 9 days since starting the gluten-free diet, I have not had any anxiety issues whatsoever, a decrease in stomach pains, and I've been sleeping a lot better. I don't want that to be psychosomatic.

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Especially since, in 9 days since starting the gluten-free diet, I have not had any anxiety issues whatsoever, a decrease in stomach pains, and I've been sleeping a lot better.

I don't want that to be psychosomatic.

It's not. Please do stick with the diet, it does sound like it is helping.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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