Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Hello All! Please Help, Confused And Learning

maclac74

Recommended Posts

maclac74 Newbie
maclac74
Posted

Hello my name is Rob and I live in Ontario. I'm 35 years old and need some advice. I've been trying to learn as much as I can about Celiac and Wheat sensitivities. I have spent a few hours reading over posts on this forum and thought I would post myself. I have tried short periods of going gluten free and have noticed positive results. With a busy life I haven't been able to stick to the diet for any length of time. As soon as I start to feel better I fall off the diet. Below is some symptoms I would love to conquer.

-Uveitis - I have had 2 severe bouts with Uveitis over the last 15 years. The last episode lasted 2 years before the steroid drops controlled the inflammation.

-Skin irritation - Both my ears are constantly itchy, also dry and flaky. They get so bad they often bleed. My scalp is also very itchy.

-Muscle, joint pains

-Bad memory, foggy thought process at times.

-Loose bowl movements, cramping, frequent bowl movements.

-tiredness, lack of energy

-Mouth sores

-unexplained mood swings

Does anybody have any suggestions or advice. Could these symptoms be a wheat/gluten sensitivity. I love my breads and pastas and have really found it hard to add variety to my diet. It would be nice if their was a simple test for the sensitivity so I could prove it to myself (which I understand their isn't other than trial and error). Please help! with any advice.

tks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

It would be nice if their was a simple test for the sensitivity so I could prove it to myself

Other than these you mean......?

I have tried short periods of going gluten free and have noticed positive results.

As soon as I start to feel better I fall off the diet.

Wolicki Enthusiast
Wolicki
Posted

It certainly sounds like it could be celiac or gluten intolerance. Since you feel better off gluten, I am gonna guess that you have one or the other. If it is, then you need to be very strict with your diet. There are some very good replacements for bread (Udi's) and pasta (made from Quinoa). However, while your body is healing, it is best to stick to whole, natural foods: fruits, veg and proteins. Add in the gluten free replacements once you've had a chance to heal.

It takes some practice to learn all the tricks and what is safe. Once you are feeling better, you will see that it is all worth it :D

maclac74 Newbie
maclac74
Posted
  • Author

Thanks for the reply. I have been off gluten totally for 3 days now and I have noticed a difference in my ears. How long do you need to stick to the diet before you see a difference.

Jestgar Rising Star
Jestgar
Posted

For some symptoms I felt better immediately, other things took months. Every person is different. Keep careful track of how you feel, some changes may be subtle.

  • 4 months later...
Branny Newbie
Branny
Posted

Patience Hun, the only way to do this is to kill your allergins and never go back to them. YES, it is a new way of life. YES, its Not an easy way, but also, YES, its worth it.

Look at it this way, every time you drop off the diet you purposly poision your body all over again and thats just insane. The longer you eat the things your body is screaming at you not to eat, the more permaniate damage you do to your body as you age.

Think about it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...