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Only Celiac In The Family


Becksabec

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Becksabec Apprentice

I'm the only known celiac in my family, and I'm wondering if that's the case with anyone else. I've read a lot of about multiple people in the same family with it, and getting tested if someone in your family has it - but I seem to be the only one.


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GlutenFreeManna Rising Star

Has all of your family been tested and come up negative? Do they have any other health issues? You may just be the only one with positive test results or you may just be the only one that wants to admit it and change their diet. I started a thread a while back about people in my life that I suspect have celiac/gluten issues but they don't want to hear about it. Some people would rather die than change their diet. So unless the symptoms get severe (to the point of interfering with their life) they may not ever tell you about them. If you feel alone in this, that's what this board is for.

Becksabec Apprentice

Has all of your family been tested and come up negative? Do they have any other health issues? You may just be the only one with positive test results or you may just be the only one that wants to admit it and change their diet. I started a thread a while back about people in my life that I suspect have celiac/gluten issues but they don't want to hear about it. Some people would rather die than change their diet. So unless the symptoms get severe (to the point of interfering with their life) they may not ever tell you about them. If you feel alone in this, that's what this board is for.

No one in my family has been tested, no, but everyone is in very good health.

torimuse Rookie

I'm almost dead certain that my mother has gluten intolerance, but she's too set in her ways. I was just recently self-diagnosed, and all of her symptoms match up to what other people seem to have, but she doesn't consider them symptoms of anything, it's all normal for her. It also wasn't until I diagnosed myself that two of my cousins began suspecting their children and perhaps themselves as being sick at all. My great grandmother didn't hardly eat anything that didn't grow out of her garden, so it's possible she was intolerant as well. Maybe even though your relatives appear to be healthy, they could possibly have a dormant gene, or unrecognized symptoms.

Tina B Apprentice

I'm the only known celiac in my family, and I'm wondering if that's the case with anyone else. I've read a lot of about multiple people in the same family with it, and getting tested if someone in your family has it - but I seem to be the only one.

I am the only one so far in my family. However, I suspect that one of my brothers may have it but doesn't want to hear about being tested. He has lots of IBS type symptoms.

RideAllWays Enthusiast

I'm the only one diagnosed, but I'm quite sure my mom has it and maybe even my sister. They both went gluten free to try it and felt great (D disappeared, bloating went down, less headaches)..but decided it was a lot of work and stopped. I'm trying to convince my mom to get tested but she says that I just want somebody else to be like me..

Tina B Apprentice

I'm the only one diagnosed, but I'm quite sure my mom has it and maybe even my sister. They both went gluten free to try it and felt great (D disappeared, bloating went down, less headaches)..but decided it was a lot of work and stopped. I'm trying to convince my mom to get tested but she says that I just want somebody else to be like me..

She needs to realize that her risk of T-cell lymphona is extremely high with untreated celiac disease. it can be fatal and no cake or bread in the world is worth that to me even if I were someone who didn't get symptoms right away.


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