Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Related To Severe Knee Pain?


gemowe

Recommended Posts

gemowe Newbie

Hi

I am currently waiting for my blood results to be diagnosed with celiac disease (or not). A little history about me have suffered with "ibs" since I was 18 I'm now 25, I have recently been diagnosed with an underactive thyroid but my main problem is severe knee/fingerpain. I hurt my knee 6 weeks ago and doctor said it was a frayed tendonm and shouls be better in 3 weeks, it wasn't and now my other knee is really painful, they hurt that bad on a morning that I can bearly walk. My question is could this severe knee pain be linked with celiac disease??

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

Well, two thoughts come to my mind. One, is it possible you hurt the other knee overcompensating for the hurt knee? The second is have you been test for RA? Autoimmune disorders are so interlinked and many people on this board have RA and other arthritic issues as a result of gluten intolerance and find relief after going gluten free. I've noticed that many with arthritis issues also do better when they eliminate dairy and soy and sometime nightshades as well.

kareng Grand Master

I hurt my knee skiing. It got mostly better but still hurt at times. If I did anything strenuous. it would hurt again. A few months after going gluten-free, I realized it didn't hurt anymore & I was doing more exercise. Hopefully, this will happen for you, too.

ravenwoodglass Mentor

Autoimmune disorders are so interlinked and many people on this board have RA and other arthritic issues as a result of gluten intolerance and find relief after going gluten free. I've noticed that many with arthritis issues also do better when they eliminate dairy and soy and sometime nightshades as well.

This describes me to a T. I did have to eliminate soy as well as gluten before my arthritis went into pretty much total remission. It only flares now when glutened or soyed. It did take about 6 months before pain was pretty much a thing of the past but I did see some improvement before then. The most severely effected joints still look a bit wonky but everything moves just fine.

jebby Enthusiast

I had increasingly worse stiffness in my fingers and left knee pain before I was diagnosed. I had given up running because the knee pain was so bad some days. The hand stiffness and knee pain went away within a few days of being gluten free and I was able to run a 10K a few weeks later. Whenever I get "glutened," my hands and L knee (and sometimes ankles) ache for a day or two. I have been worked up for lupus, RA, and lyme as well and all are negative. So, yes, arthritis can be a real symptom of celiac disease. Hope that you feel better soon!

gemowe Newbie

Thanks for all your reples. When I seen my doctor she ruled out RA as she said she could feel no damage to my cartilige and a joint screen blood test came back normal, the only abnormal bloods was a high Esr which I've had for 4 years and a abnormal GGt (but I dont drink alcohol at all)m

RiceGuy Collaborator

I started getting joint/muscle/nerve pains after going gluten-free. Long story short, it didn't resolve until I started taking magnesium and vitamin B12.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Thanks for all your reples. When I seen my doctor she ruled out RA as she said she could feel no damage to my cartilige and a joint screen blood test came back normal, the only abnormal bloods was a high Esr which I've had for 4 years and a abnormal GGt (but I dont drink alcohol at all)m

I tested negative on the RA test (called RA sero-negative), but I certainly have it. I read, however, that those with psoriatic arthritis often test negative. My ESR was through the roof, and only went down after a year on Humira. Sadly the gluten free diet did nothing for my arthritis, psoriasis or ESR :( . Sorry to be the voice of gloom :unsure:

gemowe Newbie

So are the joint/muscle pain/swelling people are experiencing to do with RA caused by celiac or can they be present without RA????

mushroom Proficient

So are the joint/muscle pain/swelling people are experiencing to do with RA caused by celiac or can they be present without RA????

I believe that most joint problems that celiacs experience are relieved by the gluten free diet. I am not sure, but I believe most of these people are never tested for RA. some like me test sero-negative, some do have full-blown RA whose symptoms moderate (like Ravenwoodglass) but whose joints have already been damaged too much to fully recover. The common diagnosis for celiacs is fibromyalgia, which was my initial diagnosis also. I am at the point now where I would be afraid to stop taking the Humira to see if ALL the dietary changes I have made have relieved my symptoms of RA; however, even with it I still sruggle with the psoriasis.

bluebonnet Explorer

i tested negative for RA but have severe bone and joint pain. i have bursitis in my hip and degenerative spine changes (in my 30's). i was deficient in D even with daily supplements and regular sunshine. i'm noticing some improvement as the months go by though. best wishes! :)

(also, i wanted to add that they tested me for RA waaay before celiac thinking my problem was arthritis).

Harley9999 Newbie

I am currently waiting for my blood results to be diagnosed with celiac disease (or not). A little history about me have suffered with "ibs" since I was 18 I'm now 25, I have recently been diagnosed with an underactive thyroid but my main problem is severe knee/fingerpain. I hurt my knee 6 weeks ago and doctor said it was a frayed tendonm and shouls be better in 3 weeks, it wasn't and now my other knee is really painful, they hurt that bad on a morning that I can bearly walk. My question is could this severe knee pain be linked with celiac disease??

Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    2. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    4. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...