Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New To Gluten-Free


firefightersgal

Recommended Posts

firefightersgal Apprentice

I have been spending a lot of time in doctor's offices lately trying to figure out what is wrong with me. I thought that my issues were independent of each other, but now it looks an awful lot like Celiac.

I had an appointment with my doctor yesterday to look at my out of control 'eczema'. The day before, my husband worked for someone (not his usual day to work). One of the other firefighters was talking about how his children were very recently diagnosed with Celiac. My husband thought that their symptoms sounded eerily like mine, so he called and asked me to do some research on it. I was surprised to find all of my health issues listed as symptoms.



  • I have joint pain and weakness. I was tested for RA, but did not show the markers in my blood.
  • I have a horrible rash that has been plaguing me for over 2 months.
  • I have been battling infertility for almost two years and suffered one miscarriage. (My hormone levels are all normal, but I am not ovulating without the assistance of Clomid). My daughter was concieved over 4 years ago with no trouble.
  • I sometimes have stabbing gas pains and a reoccuring ulcer

.

My doctor didn't seem overly enthused that I brought information in, but he did test me for celiac disease. He confirmed that my eczema is now accompanied by Dermatitus Herpitaformus. He told me that I could try a gluten-free diet, regardless of my test-result, so I did.

I'm glad to have found this group. I've already learned a lot and I've only been on here for a few minutes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You have DH and he said you "could" try a gluten free diet? Dumb doctor. DH is a positive marker for celiac disease. Not every celiac has DH, but everyone with DH has celiac. If you have DH you SHOULD remain completely gluten free.

K8ling Enthusiast

WELCOME!! We all have had experiences with doctors who make us wonder why they are doctors...it sounds like you just had one. DH is FOR SURE Celiac. Ugh

Like i said, welcome to the club, and we are all here to help!

firefightersgal Apprentice

WELCOME!! We all have had experiences with doctors who make us wonder why they are doctors...it sounds like you just had one. DH is FOR SURE Celiac. Ugh

Like i said, welcome to the club, and we are all here to help!

Thanks very much for validating what I had read before--that DH=Celiac. My doc was thinking that I might have hepatitis, but I have no risk factors for it. I'm anxious to get my blood test back, but I have been gluten free for 2 1/2 days and will continue to do so.

butterfl8 Rookie

Well, ditto K8ling and Tiffany, Dumb Dr! Welcome...To feeling a million times better. Reoccuring ulcer? That was me too. My Dr. and I both said that was due to my particular life stresses. Now we know better! Same stresses, only I either am dealing with them better; or, I'm not poisoning myself with gluten and therefore feel like a new woman. (And I'm not treating them by eating bagels. . . oops)

In any case, clean out your house as much as you can, free yourself of all gluten, including beauty products, and enjoy feeling better. Welcome to the forum! (Smart hubby too! Aren't they the best?)

-Daisy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      9

      Celiac flare years after diagnosis

    2. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

    3. - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    5. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...