Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Ibs?


captaincramp

Recommended Posts

captaincramp Newbie

Recently I have been having chronic stomachaches. I have had bloating, gas, fatigue,I am short and very thin, "Excercise Enduced Athsma" where the inhaler doesnt help, and anxiety/depression. I am a 14 year old male, amd I have not been tested, except for a blood test. The results arent't back yet, but the thing is my doctor diagnosed me with IBS. I am 4 days gluten free and I have had gluten withdrawals as some people have said. These symptoms include EXTREME HUNGER, fatigue, lightheadedness, irritability, depression, anxiety, and more gas. Do I have celiac or something else? I know it wont be a 100% answer, but your diagnosis' will be read and appreciated. Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You could be either celiac or gluten intolerant. Hang in there, your body will eventually give you the answer. Hopefully your stomach issues are improving but it can take a bit to heal. It is a good idea to limit your dairy intake at first and do try to go with as much unprocessed food as you can.

I know it is hard to be patient but it does sound like you are going through withdrawl. If you stay away from gluten that should lift fairly soon. We don't go through withdrawl to stuff we are supposed to be having in our system so that is an indication that you are doing the right thing by giving the diet a good strict try.

sb2178 Enthusiast

Definitely stick with it, and keep a detailed record of your progress for your next dr's appointment. Write down what you eat, how you feel, etc.

A diet trial really takes a couple weeks before you can be remotely sure that it's the right thing. Only your body will have the answer. If you still aren't sure after about 4 weeks, you could try to reintroduce wheat or rye to see what happens. It's very uncomfortable if gluten is a problem, but gives you a solid answer if you are still doubtful at that point.

nora-n Rookie

Asthma meds often involve steroids (keep in mind you must take asthma meds like you are supposed to, or you get sicker and can get seriously ill) and if patients take any kinds of steroids, the celaic tests might be negative, especially the gut biopsies.

False negatives.

Maybe you just have to try to go gluten free without tests.

vbecton Explorer

Hi CaptainCramp. I have exercise enduced asthma as well and use an inhaler when needed...as probably your script says. Just like you, the inhaler NEVER worked anyway. It actually made me more lightheaded because it's pumped full of speed :D . Since going gluten-free, the inhaler is a distant memory. Not that I really ever used it, but I had one around just in case. I attribute the shortness of breath, cold, burning feeling in my throat & heart palpitations to my low blood sugar attacks. Now that those are gone because of gluten-free, so is the "asthma".

As far as the IBS vs. Celiac situation. Not sure, as my bowels are still in full-blown war. I think mine is a malabsorption problem, as yours might be. Hopefully you can get some answers soon.

WheatChef Apprentice

Just a quick clarification to the whole "IBS or Celiac" thing. IBS is the acronym for Irritable Bowel Syndrome. In the medical field the word syndrome is used to describe any set of symptoms that are commonly found together. The word syndrome is not used to define an illness, disease or condition. Many of the symptoms for celiac disease qualify for IBS as they are a collection of symptoms commonly found occurring together in a malfunctioning intestine.

IBS currently is kinda a made up term. It doesn't have any exact cause, it doesn't have any exact cure, it doesn't have any specific marker that can be tested for. It's pretty much like a modern times diagnosis of the old fall-back standard of "infected with evil spirits".

Celiac disease on the other hand has certain genetic causes, has testable markers, has observable triggers and can easily be observed and manipulated. One is a scientific term, one is a kind of catch all term for "we're not really sure whats wrong with you".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      348

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    4. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.