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I Feel Better But Still Lost More Weight!


notme

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notme Experienced

still feel like I have the flu but my 'guts' are behaving. I haven't got a gluten free vitamin supplement yet. just tylenol and sublingual b-12. my sense of smell (wow) seems to be coming back and today I went a very long time before I felt like I needed to have a cigarette. food is tasting awesome and I am munching gluten-free deliciousness. but I am so disappointed I have not gained but *lost* more weight in the past 2 wks. I am on this boat for the whole 3 hour tour, so any advice/experience please do tell. appreciate you all more than you could ever know!

thanx

arlene


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rosyrear1 Newbie

I wish I could lose weight! I found out I have Celiac disease about a year and a half ago and was already large then (250). I now weigh 320 and it just doesn't matter what diet I do. I even did the HCG diet, followed it exactly, and still gained weight. I am still eating healthy and exercising when I can but still gain weight. I have 5 young kids and I work full time. I am in the process of getting divorced, he didn't support me going gluten free so that made it very hard. That wasn't the reason for the divorce though. Even with all the stress I am eating less but still gaining and I just want to feel good about myself. I do think it sucks that I had to get the fat version of this disease. Sorry I will stop complaining. I know it is bad that you continue to lose weight. I am very willing to donate weight to you! :P

T.H. Community Regular

Wel, first, I would really try to find the gluten-free vitamins, because if you have non gluten-free vitamins, you are still not healing all the way, ya know?

I lost weight for QUITE a while after going gluten free. The only thing that helped me some was to eat like a mad woman for a while, lots of carbs/high calorie stuff. I honestly don't know, but my assumption on what might be happening is that you are healing, but a big source of high calorie foods - all the gluten stuff - is now out of your diet. So if you haven't healed yet, but you aren't eating high calorie stuff, that might account for the weight loss. Keeping your calorie intake higher might help.

Wouldn't swear to it, but that's what made a bit of a difference to me. :-)

still feel like I have the flu but my 'guts' are behaving. I haven't got a gluten free vitamin supplement yet. just tylenol and sublingual b-12. my sense of smell (wow) seems to be coming back and today I went a very long time before I felt like I needed to have a cigarette. food is tasting awesome and I am munching gluten-free deliciousness. but I am so disappointed I have not gained but *lost* more weight in the past 2 wks. I am on this boat for the whole 3 hour tour, so any advice/experience please do tell. appreciate you all more than you could ever know!

thanx

arlene

notme Experienced

I wish I could lose weight! I found out I have Celiac disease about a year and a half ago and was already large then (250). I now weigh 320 and it just doesn't matter what diet I do. I even did the HCG diet, followed it exactly, and still gained weight. I am still eating healthy and exercising when I can but still gain weight. I have 5 young kids and I work full time. I am in the process of getting divorced, he didn't support me going gluten free so that made it very hard. That wasn't the reason for the divorce though. Even with all the stress I am eating less but still gaining and I just want to feel good about myself. I do think it sucks that I had to get the fat version of this disease. Sorry I will stop complaining. I know it is bad that you continue to lose weight. I am very willing to donate weight to you! :P

goodness you have a lot going on! 5 kids - you are one crazier than me :) we have 4 but they are grown. 2 still live here plus 2 grandbabies (6 & 2) but I always tell them 'im kicking you out and burning the house down' lol

I hope your divorce is as painless as possible - been there, done that. plus, our daughter's should be final this month so she can get on with her life :) I don't know how to act if the house is quiet :P

and I will take you up on that extra weight - put it on my boobs ! :D

notme Experienced

Wel, first, I would really try to find the gluten-free vitamins, because if you have non gluten-free vitamins, you are still not healing all the way, ya know?

I lost weight for QUITE a while after going gluten free. The only thing that helped me some was to eat like a mad woman for a while, lots of carbs/high calorie stuff. I honestly don't know, but my assumption on what might be happening is that you are healing, but a big source of high calorie foods - all the gluten stuff - is now out of your diet. So if you haven't healed yet, but you aren't eating high calorie stuff, that might account for the weight loss. Keeping your calorie intake higher might help.

Wouldn't swear to it, but that's what made a bit of a difference to me. :-)

right now I am not taking any vitamins except b-12. I thought maybe since my body was actually absorbing nutrients maybe I would get enough from a balanced diet. but, yeah, I stay away from high calorie/carbs normally (except bread!) so I am going to add a lot more and also get my hands in some gluten-free multi-vitamins. thanx :)

sahm-i-am Apprentice

I was told to gain weight when I was diagnosed with Celiac in April. It took a few months for me to gain 10 lbs. It was alot of work - I had to consume 3000 calories a day and it finally started happening. I couldn't eat like that forever and had to stop - I felt sick, not GI sick, but full-never-want-to-eat-again sick. And I didn't eat junk food - wanted to gain it the healthy way. It just takes time. I kept up with exercise too. I have since started losing the weight again, know GI doc isn't going to be happy - but maybe other things are going on. Go back to dr. next week. Just can't continue to eat so much.

Hey, maybe try eating smaller meals all day - munch through the day? I might try that, too.

Marz Enthusiast

Hi notme :) I'm in the same boat, and I'm *slooowly* gaining weight, but at least it's happening. I managed to start gaining weight about 2 weeks or so after going gluten free, but then the damage in my SI might have been light.

How long have you been gluten-free? Some people mentioned gluten causes fluid retention, so it might be the case that as you're gaining tissue weight you're losing water weight at the same time from being gluten-free? Not sure how much that would affect you.

And how are you feeling? Do you feel like you're still having GI issues? Gluten contamination? Some people have issues with soy and casein protein from milk, and in some cases that could still be damaging your intestine or stopping it from healing?

You can try get some gluten-free digestive enzymes. I read a study about kids with celiac disease - digestive enzymes helped a lot with weight gain in the first month, thereafter the benefit wasn't as pronounced, so I'd definately suggest trying this short term to see if it helps?

I snack on stuff the whole day - fruit, dried fruit, nuts, rice cakes with peanut butter or jam, rolls of ham... I pack myself a lunch box full of stuff for work, and I also take a proper "lunch" with me for noon that I heat up - usually mince/bacon, rice and veges. I tried using powder shakes, but just figured out I'm soy intolerant and the stuff makes me ill, I'm going to have to find a gluten-free, soy-free substitute. I also pack the occasional chocolate, it's not "healthy" but it contains a crap-load of sugar, and really whether it comes from a chocolate or a fruit it's still energy ;)

If you're already eating like the bomb, and not putting on weight, then it can only be damage to your intestine being slow to heal - find out if you're intolerant to any other foods, and definately try the enzymes :)

Good luck!


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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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