Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

jasonD2

How Do I Know When Im Glutened?

Recommended Posts

Honestly I can never tell. Sometimes I get tingling in my legs but that doesnt happen frequently and since i have so many food sensitivities it really could be anything.

Last night I got some sorbet at a gelato place. The owner confirmed the sorbet is gluten free and after i got some tingling in my legs..not sure if it was gluten or something else

Tonight I ate at a Greek place that was listed on a gluten-free site. I told the waitress gluten free and even gave her my allergy card but i dont even know if the chef read it since she returned it seconds later. She was very kind and accommodating, but was my meal really gluten free? I ordered a plain salad, lamb chops and some steamed broccoli. the lamb was broiled and had some kind of crust on it..not like it was breaded but there was something charred and crusty on the top. im assuming it was ok since she told me they can do any meat or fish gluten-free but i forgot to tell her to leave any marinades off. Not sure if there was anything else i coulda done.

eating out has become much easier for me and im defly not as neurotic about ordering gluten-free anymore, but its still a minefield out there and since i dont get severe symptoms from CC i just never really know whats safe or not and i cant very well get an enterolab sool Ab test after every meal.

How do you guys deal with this? specifically those of you who dont get noticeable symptoms after cc'd but do have other food sensitivities ?

Also i have been making a habit of popping GlutenEase prior to meals whenever i eat out. My doc recommended this and it defly hasnt hurt

J


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I had to spend 3 months with eating only food I cooked myself from scratch before I could pinpoint the gluten source. I CCed myself constantly before that without realizing it. Once I was super strict, I could reintroduce things and be able to tell if eating out or grilling or other things caused a reaction. I learned I was more sensitive than I thought and that I wasn't entirely gluten free prior to the 3 months of cooking in a gluten free house all my own food.

Share this post


Link to post
Share on other sites

Your doctor is an idiot. GlutenEase and all the other DPP-IV products are a complete scam. DPP-IV only removes prolines from the end of peptides, it doesn't cleave ones in the middle like on gliadin peptide.

If you don't react noticeably to gluten, just take reasonable caution and you will be fine.

Share this post


Link to post
Share on other sites

Well I wouldn't jump the gun and say my doctor is an idiot- he only suggested I take it as a precaution when eating out (for cc) and that I should still do my best to avoid gluten. not like he said i can eat at subway and the pill will digest all the gluten. I do notice some benfit from the enzyme so i will continue to take it as i see fit

By the way read the reviews for this product on i herb and amazon - all positive


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

Share this post


Link to post
Share on other sites

hhmmm.. i just looked up that glutenease .. idk.. i DID used to take their DigestGold (with digestive enzymes)...

but ya- i THINK they explain in the fine print- that it helps alleviate symptoms but that it does not protect someone that is celiac.

i THINK it MAY help break it up- so it's easier to digest- however our antibodies will still recognize it, and start going into autoimmune mode. i THINK Papaya Enzyme helps break up Wheat Germ Agglutin... and D-Mannose helps to bind up Gluten... but still-> the best strategy is to AVOID it all together.

i dont have great advice for you- ive only been 100% gluten-free for 10 weeks, and have mostly avoided restaurants cause im just not sure how to be safe with all the stupid sauces,etc. :angry: ive only gone to Pei Wei (gluten-free menu), Chipotle (allergen list), and once ordered super plain sushi & brought gluten-free soy sauce packets with me.

still a little apprehensive.

ps- i cant always tell if ive been glutened, cause i have so many other intolerances


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

Share this post


Link to post
Share on other sites

Well I wouldn't jump the gun and say my doctor is an idiot- he only suggested I take it as a precaution when eating out (for cc) and that I should still do my best to avoid gluten. not like he said i can eat at subway and the pill will digest all the gluten. I do notice some benfit from the enzyme so i will continue to take it as i see fit

By the way read the reviews for this product on i herb and amazon - all positive

Placebo effect is a lovely thing. There is simply no way DPP-IV can detoxify gliadin for celiac disease. The enzyme does not cleave internal prolines. Period. You are NOT protecting yourself from damage!!!

Share this post


Link to post
Share on other sites

Never said that it was protecting me from damage and the enzyme does in fact help me with digestion. sorry :(


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

Share this post


Link to post
Share on other sites

And again I may not even have celiac - all i know is when i take this before meals in restaurants i always feel fine after and in the past there were times when i felt ill...even at the same restaurants


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

Share this post


Link to post
Share on other sites