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So Frustrated ...

Emilushka

By Emilushka
in Coping with Celiac Disease

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Emilushka Contributor
Emilushka
Posted

I think I have to give up cheese. I'm not sure, but every time I eat a bunch of it I feel ill. If I eat smaller amounts, I feel a little icky but not terrible. Kefir is OK. I think this all adds up to having trouble with casein.

But now all of a sudden, out of the blue, my back is killing me! Muscle aches as if I'd done something specifically bad, but I was just sitting in my chair! I did nothing to my back!

I am so sick of feeling sick. Right now I'm just frustrated. These back aches are a totally new problem that I'm not used to and cannot explain. Frustration.

Plus, I really love cheese. Seriously. Love. Cheese. :-(

Please tell me this gets better ... I was feeling better before and now I feel like crap again. It just keeps feeling icky.

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rdunbar Explorer
rdunbar
Posted

Hi, I understand your frustration,

I got super stubborn about dairy, not so much cheese, but cream for my tea and occasionally I would break down and have ice cream when I got really depressed, even knowing that I would feel horrible, and my that dermatitas herpetiformis would flare up; I was essentially consciously inflicting pain on myself . What was wrong with me?

I have to say the healing process didn't begin for me until I quit dairy entirely, of course, I did this at the same time I got strict about risking CC, and also other foods like nightshades and legumes, so it's hard to tell how significant no dairy has been, but it's been a huge difference on the whole. I literally knew it was bad for me when I'd binge on ice cream, but lied to myself that ' I can get away with a little in my tea' , apparantly not.

I had major withdrawl for a few weeks where I could barely get out of bed after I finally phased it out, I was just totally run down for a while and fatigued.

It was worth it because I'm doing much better now ; I think casien just registers as the same thing as gluten, so your immune system is going to get triggered all the same to launch an antibody attack. Also, when your gut lining is damaged, it's unable to fully protect your bloodstream from picking it up directly, as in leaky gut syndrome .Supposedly, after you heal up enough you can add in the harder cheeses like Parmesan ( which is one of the best IMO ), and goat cheese. But it takes some time

The longer I'm getting used to living a gluten free, I'm just viewing food and eating in a different way, just realizing that it's not for entertainment, you know, the animals don't have to have thaifood one day, Italian the next, they just eat. Why not us? I guess I'm just slowly accepting that I have to do without a lot of things that, while enjoyable, are really unessesary as well as very harmful. So, it can and will get better with the frustration, it just comes with the territory, and it's perfectfully natural to respond this way,

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tarnalberry Community Regular
tarnalberry
Posted
But now all of a sudden, out of the blue, my back is killing me! Muscle aches as if I'd done something specifically bad, but I was just sitting in my chair! I did nothing to my back!

Actually, "just" sitting in a chair (for long periods of time, in particular) is one of the biggest contributor to back pain (muscle pain as well as joint pain). It's doing *nothing* (as often happens in a chair) that can make back pain a problem.

That said, it still sounds like dairy is bothering you. (Kefir, however, has plenty of casein - it's the lactose that is consumed by the bacteria in kefir.)

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curiousgirl Contributor
curiousgirl
Posted

My 2nd day dairy free. I fought it too...so hard not having it in my coffee. Using coconut milk now...just not the same! BUT, I'm really tired and groggy today and yesterday and was wondering if I'm going through withdrawal?? Hmmmm....hate when that happens!

Take a nice hot epsom salts bath and drink lotsa water for aches.

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Emilushka Contributor
Emilushka
  • Author
Posted

I think casien just registers as the same thing as gluten, so your immune system is going to get triggered all the same to launch an antibody attack. Also, when your gut lining is damaged, it's unable to fully protect your bloodstream from picking it up directly, as in leaky gut syndrome .Supposedly, after you heal up enough you can add in the harder cheeses like Parmesan ( which is one of the best IMO ), and goat cheese. But it takes some time ... So, it can and will get better with the frustration, it just comes with the territory, and it's perfectfully natural to respond this way,

Yeah ... I am totally afraid that my body sees casein as gluten-ish and therefore to be attacked. I am still sad about giving up gluten. I don't want to give up my beloved dairy too.

Time is not my strong suit. I am an impatient person. Ugh.

I guess I'm going through all those stages of change. I think I'm still at the pitching-a-hissy-fit stage right now.

Actually, "just" sitting in a chair (for long periods of time, in particular) is one of the biggest contributor to back pain (muscle pain as well as joint pain). It's doing *nothing* (as often happens in a chair) that can make back pain a problem.

That said, it still sounds like dairy is bothering you. (Kefir, however, has plenty of casein - it's the lactose that is consumed by the bacteria in kefir.)

I actually was standing all morning at the coroner's, so I was surprised because I was finally sitting (which usually feels like a welcome change after standing for a long period of time).

I didn't know about the casein in kefir. That ... really sucks. A lot. Ugh. I go to see the specialist on Tuesday. I'll see what he says about cheese vs probiotics because I love the cultures in kefir. Maybe I can tolerate small amounts? I can hope, right?

My 2nd day dairy free. I fought it too...so hard not having it in my coffee. Using coconut milk now...just not the same! BUT, I'm really tired and groggy today and yesterday and was wondering if I'm going through withdrawal?? Hmmmm....hate when that happens!

Take a nice hot epsom salts bath and drink lotsa water for aches.

I am still kicking and screaming about the dairy thing. I love cheese. I don't want to go dairy-free ... but I may be joining you if my doc tells me I have to. Ugh. Still kicking and screaming over here.

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sb2178 Enthusiast
sb2178
Posted

i've finally given up dairy and PB (sigh). and, unfortunately, i am feeling better. The random occasional pain is pretty much gone.

I have been eating some goat cheese, not a whole lot, but will probably stop that too.

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