Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Metagenics Question


mommyoftwinks

Recommended Posts

mommyoftwinks Explorer

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

As far as making them palatable you might be able to mix the powder with something like applesauce instead of putting it in liquid. You might want to ask your provider if that is ok.

Are you aware that the Meta Fiber has oats in it? Not all of us tolerate oats. You may want to try them one at a time to make sure you tolerate the ingredients.

Open Original Shared Link

Ingredients:

Rice bran

Beet fiber

Oat fiber

Apple fiber

Cellulose

Olive oil

D-alpha tocopheryl acetate

Link to comment
Share on other sites
mommyoftwinks Explorer

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

Link to comment
Share on other sites
ravenwoodglass Mentor

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

I saw one of the best naturopaths in my state and was positively shocked how little he knew about what celiacs can and cannot tolerate. He got me with everything he prescribed. Unfortuately we can never take it for granted that even folks that seem knowledgeable really know how little gluten we react to.

Your rash may be DH which can take some time to resolve. I would wait on the stuff with the oats until the rash is resolved. Also with that rash especially do check and make sure all your toiletries, soaps and lotions are free of gluten ingredients. If your concerned about the amount of fiber your getting perhaps getting more fruits and veggies might be the way to go for now. Sweet potatoes are an excellent source of both soluable and nonsoluable fiber as well as loads of vitamins. They are used in oriental medicine to regulate both D and C. It might help to add those to your diet for a bit. If you feel you need more in the way of supplementation there are some good vitamins that are available. County Life and Now are two good brands and likely much less costly than the brand you got through their office.

Link to comment
Share on other sites
mommyoftwinks Explorer

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

Link to comment
Share on other sites
ravenwoodglass Mentor

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

If the rash is DH it can take some time to resolve. You should stop getting lesions or they should go down in intensity after a bit if you are really stict with the diet and what you put on your body. Even the tiniest amount of gluten will keep those antibodies active, that's the reason I advised holding off on the supplement with oats.

I know how frustrating it can be. I have DH also although it has not been active in a long time now. I also am someone who shows negative on blood work which makes it really hard to get a diagnosis. I went undiagnosed for over 40 years. I am glad you finally were able to figure out that gluten was an issue for you but it does take some time to heal. It is hard to be patient but we really have no choice. In the meantime sometimes cool compresses can help with the itch and avoid things like real hot baths and showers as that can make the itch worse. Use warm water to bathe instead of hot. Hopefully the rash will resolve soon for you.

Link to comment
Share on other sites
Charlie's Girl Apprentice

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin

My last acupuncturist gave me several Metagenics products and I couldn't handle any of them. I tried Sustain, UltraInflamX and Spectrazyme. Several months before I was diagnosed, she gave me SpectraZyme. I had horrible D for almost 2 months. I mentioned this to her every week. After I was diagnosed, I asked her if any of her supplements were causing the D- she said no. I was in such a fog- but one day went through my supplements and saw in very small writing that SpectraZyme was not suitable for people with wheat allergies. When I pointed this out to her- she said "hmph." She knew I had wheat allergies- so that was a bit frustrating- but I digress. After I quit taking SpectraZyme- I was still having problems- tho' not as bad- with the UltraInflamX- so I switched to Sustain- still D. Quit the Sustain and it went away.

Instead of Sustain- I use Intestinew by Renew Life. I had been using it before- but switched as my acupuncturist swore by the Metagenics products that she carried. I am sure they are good products for people without Celiac or wheat allergies (I have both)- but I prefer Intestinew. You can get it at Whole Foods- I order it online from Swanson's Health Products as I believe it is a bit less expensive. I put it in water and can't taste it. (well maybe a little- but it isn't bad)

Don't know what to say about the fiber products- I don't use them. I swing so easily from C to D that I don't even try them anymore. I do eat 1-2 apples per day (no matter what) and a handful of raisins at night if things are backing up.

I was not given the Candibactin- are you using them for liver detox?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyoftwinks Explorer

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Link to comment
Share on other sites
Charlie's Girl Apprentice

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Sorry I can't help you with the liver detox. I am sure someone else will pop up with some great ideas.

I don't know what it was with the UltraInflamX and the Sustain- but they both got me. Cross contamination? Who knows? Sometimes I just throw up my hands and say "next."

Try the Intestinew. There used to be a really nice lady with an oh so pleasant southern accent who answered their 800 number and she was happy to talk about their products.

Link to comment
Share on other sites
Looking for answers Contributor

I'm on Sustain and Glutagenics...just started a week ago. Since then, I've been having pain under my ribs on my left side. Ugh!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,186
    • Most Online (within 30 mins)
      7,748

    Grandma anna
    Newest Member
    Grandma anna
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
×
×
  • Create New...