Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Hair Loss...?

AJoy

By AJoy
in Coping with Celiac Disease

Recommended Posts

AJoy Rookie
AJoy
Posted

I am new at this and have been seeing a lot about hair loss lately. Since I can remember I have been a profuse shedder - especially in the shower. I don't have bald spots or anything of the sort and unfortunately haven't ever noticed any thinning either. I always thought this to be somewhat normal for a girl with ultra thick long hair - is this in fact what people mean by hair loss in relation to celiac disease? I also had my thyroid checked when I was originally tested for Celiac about a month ago and it came back normal.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AnnaR Newbie
AnnaR
Posted

I am new at this and have been seeing a lot about hair loss lately. Since I can remember I have been a profuse shedder - especially in the shower. I don't have bald spots or anything of the sort and unfortunately haven't ever noticed any thinning either. I always thought this to be somewhat normal for a girl with ultra thick long hair - is this in fact what people mean by hair loss in relation to celiac disease? I also had my thyroid checked when I was originally tested for Celiac about a month ago and it came back normal.

I have long hair (just past shoulders) and was losing handfuls of hair in the shower before I got my celiac diagnosis. I also have Hashimoto's Thyroiditis so it could be related to that, but the hair loss was one of my first problems to leave when I started the gluten free diet!

jess-gf Explorer
jess-gf
Posted

My hair stylist noticed this about my hair too a few months ago. I think over the past year I've just been slowly loosing hair whenever I wash it or comb or brush it, regardless of knots. Fortunately I have a ton of hair and nobody really notices it except for me and my hair lady. I'm just assuming it was from malnutrition and I'm hoping that soon it will go away.

SGWhiskers Collaborator
SGWhiskers
Posted

I also have long thick hair. I think long thick dark hair is just more noticable wrapped around a ponytail, on the bathroom floor, or in the shower drain. I never noticed thinning patches or clumps of hair falling out while on gluten. 3 months after going gluten free, my hair in the front center of my head started getting thin and my hairdresser commented on the amount of hair I was loosing. It turns out that after your body goes through a major stressor (illness, pregnancy, environmental, and aparently for me starting a gluten-free diet), the hair roots shift together into a neutral non-growing state. Then 3 months later, they naturally fall out and start the process of growing new hairs. It is a normal process that all the hairs on your head go through at some time or another, but usually not all at once. My thyroid is fine, and the hair grew back. I just went for a side part or pulled back while the hair was recovering. Now, I'm pregnant and my hair has stopped falling out almost entirely. I expect that after the 3 month dormancy period, my hair will be falling out in handfuls again. Probably just about time for delivery.

Get your thyroid tested, but if that is negative and you don't have other issues, consider waiting 6-9 months for the new growth to fill in. Buy one of those thick headbands. I got lots of compliments.

Bella001 Explorer
Bella001
Posted

I am new at this and have been seeing a lot about hair loss lately. Since I can remember I have been a profuse shedder - especially in the shower. I don't have bald spots or anything of the sort and unfortunately haven't ever noticed any thinning either. I always thought this to be somewhat normal for a girl with ultra thick long hair - is this in fact what people mean by hair loss in relation to celiac disease? I also had my thyroid checked when I was originally tested for Celiac about a month ago and it came back normal.

Yes, I had hair loss. I have long think and curly hair. I will also have some loss but it was getting out of control for a while before I figured out what was wrong with me and went gluten-free. Hair loss has slowed big time but when I get glutened, it's back with full force.

Ivy Rookie
Ivy
Posted

I am new at this and have been seeing a lot about hair loss lately. Since I can remember I have been a profuse shedder - especially in the shower. I don't have bald spots or anything of the sort and unfortunately haven't ever noticed any thinning either. I always thought this to be somewhat normal for a girl with ultra thick long hair - is this in fact what people mean by hair loss in relation to celiac disease? I also had my thyroid checked when I was originally tested for Celiac about a month ago and it came back normal.

I have had handfuls of hair during shampooing. Apparently for me it's alopecia. Probably related to my fibromyalgia, or not, who knows? I have yet to have any bald spots, and it does seem to grow back. Shedding seasons just seem to be extreme sometimes. I have found two things helpful. Vitamins (B's including sublingual methylcobalamin) and monitoring my stress levels. Also quit using shampoos with SLS and excessive alcohols.

tea-and-crumpets Explorer
tea-and-crumpets
Posted

I had a lot of hair loss, also thanks to PCOS. I started eating gluten-free a couple of months ago and I am tentatively encouraged that my hair is growing back, but I'm not quite sure yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Hair will grow back and your fingernails will get stronger and better, the longer you are on the gluten free diet. B)

mushroom Proficient
mushroom
Posted

Hair loss for me has been a constant for years, with illness, with antibiotic use, and then really bad for no particular reason, I thought. Turns out it was gluten. My hair became very thin and sparse around my front hairline, like a lol, and I thought, heck, I'm not that old. Since gluten free it has grown back in again.

jessicalw28 Apprentice
jessicalw28
Posted

I have thick, curly hair and have always noticed that it seems like it sheds more than normal. I wasn't sure if it was anything to worry about or not. I always seem to have a lot of hair get caught in my brush and have to clean the shower drain every day. My fiance is always picking stray hairs off of my clothes. I'm just starting my journey with the gluten free diet, so hopefully it will help. It never looks like my hair is missing, but it does make a mess.

jebby Enthusiast
jebby
Posted

I lost a ton of hair when I first started to get sick, it started to grow back after about 3 or 4 months of being gluten free and is now back to normal. My fingernails grow much faster now too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      360

      Terrible Neurological Symptoms

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and...
    2. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      360

      Terrible Neurological Symptoms

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes...
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      360

      Terrible Neurological Symptoms

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    4. AutomatedGlutenEjector
      - AutomatedGlutenEjector commented on Scott Adams's article in Latest Research
      71

      COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk

      This hypothesis certainly lines up with my experience. Avoided getting Covid until August 2022. Celiac diagnosis three months later, and they think they caught it early (not a ton of damage in my EGD). I'd suspected the connection before, so it's nice to see researchers are interested in this question.
    5. akebog
      - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,062
    • Most Online (within 30 mins)
      10,442
    AutomatedGlutenEjector
    Newest Member
    AutomatedGlutenEjector
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
×
×
  • Create New...