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This Is Silly, I'm Staying gluten-free!

Kimbalou

By Kimbalou
in Coping with Celiac Disease

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Kimbalou Enthusiast
Kimbalou
Posted

So, my GI doc told me to "liberlize" my diet and go ahead and eat wheat, gluten, etc. My endoscopy is next Wed. Yesterday I ate what I wanted (a pretzel, scone, starbucks coffe, milk...and paid the price!!) I know for sure that the Celiac diet has helped me this past week, so when I ate what I wanted yesterday, it wasn't worth it! The horrible gas and abdominal pain! So, I'm gluten-free again, and I will take that chance. I'm sure my gut won't heal in 1 week! I'm sure I've had this for years.

It's as if the Dr. said "we know Gluten is poisoning you, but go ahead and eat it so we can make sure your biopsy is positive.". Crazy, if you ask me. so, if my biopsy comes up neagtive, it would be a miracle to be cured in 1 week. My blood tests were highly positive, so I will go by that.

I am getting the endoscopy, but I will eat gluten-free and not suffer...

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Free-CountryGirl Apprentice
Free-CountryGirl
Posted

Agreed, stop eating the gluten :)

But I have ask, why do u need an endoscopy is your had positive blood tests?? Isn't that enough??

WheatChef Apprentice
WheatChef
Posted

The only good medical advice:

-Doctor, it hurts when I do this.

-Don't do that.

jerseyangel Proficient
jerseyangel
Posted

The only good medical advice:

-Doctor, it hurts when I do this.

-Don't do that.

:lol: :lol: Ya got that right!

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

Agreed, stop eating the gluten :)

But I have ask, why do u need an endoscopy is your had positive blood tests?? Isn't that enough??

The doctors like to get a definite diagnosis, and the only way is with a biopsy. I've decided to do it in case there is something else going on as well.

T.H. Community Regular
T.H.
Posted

The more I hear about doctors telling us to do something that is hurting us, so that they can do a test, the more I sit and think: what ever happened to 'do no harm?'

Just because a test wasn't worked out in a lab, but was rather a gluten elimination followed by a gluten challenge, doesn't mean it doesn't have medical validity. It may mean you do a couple more tests to check for other potential reasons that the gluten caused an issue...but doing those tests wouldn't cause harm, while eating the gluten is.

It doesn't seem like the way of thinking that applies to celiacs is in our best interest, at times.

ravenwoodglass Mentor
ravenwoodglass
Posted

The doctors like to get a definite diagnosis, and the only way is with a biopsy. I've decided to do it in case there is something else going on as well.

There can be other things going on but the hard question is...how often are those other things caused by the reaction to gluten? And if they are would they resolve with the diet rather than you having to take meds. For myself gluten was the reason for both an ulcer and severe diverticulosis and both resolved after I had been gluten free for a while without the scripts that I was given for the ulcers. You may want to consider holding off on the endo and having it done a few months after you are on the diet if you are still having issues. I'm not saying don't have the endo, the choice whether to do the test or not is yours alone.

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Happytobefree Newbie
Happytobefree
Posted

So, my GI doc told me to "liberlize" my diet and go ahead and eat wheat, gluten, etc. My endoscopy is next Wed. Yesterday I ate what I wanted (a pretzel, scone, starbucks coffe, milk...and paid the price!!) I know for sure that the Celiac diet has helped me this past week, so when I ate what I wanted yesterday, it wasn't worth it! The horrible gas and abdominal pain! So, I'm gluten-free again, and I will take that chance. I'm sure my gut won't heal in 1 week! I'm sure I've had this for years.

It's as if the Dr. said "we know Gluten is poisoning you, but go ahead and eat it so we can make sure your biopsy is positive.". Crazy, if you ask me. so, if my biopsy comes up neagtive, it would be a miracle to be cured in 1 week. My blood tests were highly positive, so I will go by that.

I am getting the endoscopy, but I will eat gluten-free and not suffer...

I went this route also, but you have to intake gluten daily for a minimum of 4 weeks to get visible damage in your stomach and/or intestine. I think my GI thinks I am nuts because all my symptoms couldn't be proven. I had been gluten free for a year and a half before I went to get tested. I was so scared of intake and had forgotten exactly how I felt when I ingested gluten. I got a painful reminder, but I journaled all my experiences so I could inspire myself to live without. I held up for 2 to 3 weeks of the 2 month period my GI requested I ingest gluten. I will not do that again. I know I am so much better off without.

Good luck.

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