Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Questions About Alleviating Joint Pain

srall

By srall
in Coping with Celiac Disease

Recommended Posts

srall Contributor
srall
Posted

A big perk of going gluten and dairy free is that my arthritis really eased up. Especially a joint in my neck that was causing me chronic pain for years. However, it's a year later and I still have enough joint pain to interfere with my lifestyle, especially in my knees. So, I'm finally at a breaking point and I'm just now becoming very very strict about eliminating night shades, soy, coffee and alcohol. It's only been about 72 hours but I feel like the pain is worse, not better. I am pretty certain that I'm not getting cc from gluten as the house is gluten free and I haven't eaten out in weeks. Oh...I have also been taking a higher dose of vit D (5000 IU/day)

Does anybody have any advice? Am I looking at weeks or months before I feel better? What about glucosamine? I'd rather not take another supplement but I'm so tired of achy joints. Am I just arthritic and that's the way it is?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

How is your vit D level? You may need more. Last year mine was at 16.7 range is 32.0-100.0. My Dr. put me on 50,000 IU Rx a week for two months and then I started taking 5,000 IU a day for a few months, now I am taking 3,000 IU a day. It is time for me to get tested again so I can see where my levels are. I am trying to remember, I think it took about six months for my joint pain to go away. I also added in a B-Complex with C and Fish Oil, I think those helped too.

Fire Fairy Enthusiast
Fire Fairy
Posted

My Dr told me to take 10,000 IU D in the morning and Bluebonnet Calcium Citrate Magnesium D3 at night(800 IU D and 1000 mg calcium).

GFinDC Veteran
GFinDC
Posted

... So, I'm finally at a breaking point and I'm just now becoming very very strict about eliminating night shades, soy, coffee and alcohol. It's only been about 72 hours but I feel like the pain is worse, not better.....

Give it time. It took a over a month for me to get much better after stopping soy. It is not a light switch reaction.

txplowgirl Enthusiast
txplowgirl
Posted

Give the nightshades and soy about 6 weeks. It'll take a little while for those to get out of your system. Sounds like you might be going through withdrawal effects too. I take 1000 mgs of magnesium also as well as Vit D and Vit B-12. That has helped with my pain a lot.

You do know what all the nightshades are, right? If not, they are potatoes, tomatoes, tomatilla's, all bell peppers, eggplant, paprika, and if I remember right okra. Someone correct me if i'm wrong.

I hope you get to feeling better.

txplowgirl Enthusiast
txplowgirl
Posted

Dagnabit, double post, sorry

srall Contributor
srall
Posted
  • Author

Everyone, thank you. I can handle a 6 week wait. I just want it to get better eventually. I know with gluten it took months for everything to start easing up so I don't know why I'm surprised. And thanks for the nightshade list. I knew every one but okra...but that's not a big risk up here in the north. Plus I don't care for it. So...I'll stay the course and get vitamin levels checked at my next appt. I appreciate the responses. Very helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      My dad had an Abdominal Aortic Aneurysm. Fortunately, it was discovered during an exam. The doctor could feel my dad's heart beating in his stomach. The aneurysm burst when the doctor first touched it in surgery. Since he was already hooked up to the bypass machine, my dad survived ten more years. Close call! Triple A's can press on the nerves in...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and...
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes...
    4. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    5. AutomatedGlutenEjector
      - AutomatedGlutenEjector commented on Scott Adams's article in Latest Research
      71

      COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk

      This hypothesis certainly lines up with my experience. Avoided getting Covid until August 2022. Celiac diagnosis three months later, and they think they caught it early (not a ton of damage in my EGD). I'd suspected the connection before, so it's nice to see researchers are interested in this question.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442
    Juls9503
    Newest Member
    Juls9503
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
×
×
  • Create New...