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What Happens To You When You're Contaminated?


sydneysmommy

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sydneysmommy Apprentice

I've seen that a lot of people get very harsh reactions to being glutened (throwing up, sick for weeks etc). That's awful. Luckily, I havent had such a bad reaction as that since I was first diagnosed.

But I am wondering if it is normal, or if anyone else is like me?

Whereas, if I get contaminated or ingest gluten I feel immediate pain in my lower abdomen. I feel very bloated and an overall long lasting feeling of indigestion and pain. I get constipated for a day or two. Then followed by a couple weeks of fatigue, migraines, hormonal fluctuations that cause acne, and my menstrual cycle goes WHACK. And for some reason I always get a sinus infection or cold???

I've never heard of anyone else reacting this way. Am I freaky? Anyone know how I can deal with these reactions when I am contaminated.... bc unfortunately I've been glutened THREE TIMES in the last two months and it's put a giant wrench in my life and a lot of goals and plans I've had. SO FRUSTRATING.

Any advice?


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txplowgirl Enthusiast

Yes maam, there are quite a few on here including me that gets those kind of reactions and others too. Rest easy, you're not a freak. All I can say is try to relax, take deep breaths and try taking a nap during those times if you can. Pepto bismol is our friend, lol. Drink lots of water to try to flush what you can out of your system. I personly have gotten something from the health food store called L-Glutamine. It helps soothe the tummy, some have reported it dosen't work for them. Thank goodness it works for me.

I hope this helps you some. Good luck.

eatmeat4good Enthusiast

Yours is a very common reaction. I've read those symptoms a lot around here.

I hate to hear it lasts weeks too.

I hope things settle down for you really soon.

Jenn624 Rookie

I have been gluten-free since December 26th. I felt better within days of giving it up. Now, if I have any gluten, I suffer from such horrific diarrhea that I end up inflamed for days. It's horrible. This past week, I've had three accidental exposures...first time in months. I am at the point that if a packaged product doesn't say gluten-free, I'm not touching it!

Luddie Newbie

I have been gluten-free since December 26th. I felt better within days of giving it up. Now, if I have any gluten, I suffer from such horrific diarrhea that I end up inflamed for days. It's horrible. This past week, I've had three accidental exposures...first time in months. I am at the point that if a packaged product doesn't say gluten-free, I'm not touching it!

Jenn,

I've come to the point that I don't eat ANY prepackaged food, whether or not it says gluten free. In all honesty people may put that label on a product, but not realize about potential cross contamination (that's giving people the benefit of the doubt :) ) Seriously, it's much safer to make your own. Takes longer, but definitely safer.

Luddie

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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