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Marie1976

Weird Skin Pain

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For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

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For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

so funny you mention this because my daughter was just complaining about this last week--she tested neg for celiac,(even had the endoscopy) but I swear she has it. her entire forearm was, in her words "super sensitive", like the "skin was full of nerves" . it went away after about three hours, but she says it's happened before. she's almost 19, has reactions to dairy, gets horrible migraines, always has headaches, has an upset belly most the time, always has had (in my opinion) "weird" poops....but I've been telling her to TRY and go gluten free for a month and she just wont :( stubborn kid.

so, I wonder if this is a symptom as well. I remember having this happen to me. it is very odd.


celiac/gluten intolerance diagnosed in July of 2010

hemochromatosis (genetic iron storage disorder) diagnosed at the same time. The two diseases have been linked in studies.

also have atrial fibrillation, and poor weight gain.

diagnosed with fibromyalgia 4/2011.

gluten free since july 2010.

investigating other food sensitivities daily!

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For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

This happens to me as well. It used to only happen when I was sick or getting sick. I never knew how to explain it, my skin just hurt. Now it happens when I am not sick. I thought it was something that was common to everyone. I remember the first time I told my husband "You know how your skin hurts when you are coming down with something?" He looked at me like I had two heads. He had never heard of such a thing.... Glad to hear it's not just me.

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I tend to get it before a migraine (migraines aren't formally diagnosed as they're pretty rare and a couple of aleve with a long nap generally gets me through them) and the skin pain is worse than the head pain. I HATE wearing clothes then, because it hurts.


2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

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I too have had this. And it does happen more with being sick, but I've had it with migraines too. My husband thought it was so weird that I couldn't wear anything but super loose clothing when I used to have migraines.

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Hi, what you are experiencing is mild neuropathy. My whole family would complain about this. You might check your B vitamins especially B12. Our family takes a B50 complex and B12 sublingual 2-5,000 mcg 3 to 4 times a week. We do not experience this problem anymore.


C.D.

Mom-Gold Star Celiac dx June 2005 with many neurological complications DQ2/DQ1, 0603, dx with DH Oct 2005

Dad-Celiac Disease-positive AGA IgA and IgG, positive tTG IgA DQ2/DQ1, 0609

Son-Celiac Disease-positive AGA IgA and IgG, positive tTG IgA DQ2

Daughter1-Celiac Disease positive tTG IgA DQ2

Daughter2-Celiac Disease-Mild Gluten Challenge caused severe anemia and major drop in Ferritin, Iron, and saturation levels with a major increase in TIBC, DQ2/DQ1, 0609 Dx Graves Disease

I also believe doctors need to make sure all vitamin levels are at the mid to high range in sick patients not just Celiacs. Mega doses of Vitamin D3 has helped my neurological problems.

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Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

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Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

Lately, I have been experiencing this mostly on my stomach which is different especially as I haven't been "sick." No rash, no bumps, no redness at all even though each time I think "there's got to be something there!"

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I don't now if any of you are still following this thread, as it's quite old... But I have had similar symptoms for the last five years or so. I get these "attacks" where my skin feels like it's badly bruised, very sensitive and painful to the touch, but there's no bruise or rash. I usually get it on my back, the back of my neck, my stomach, and sometimes my chest, face, arms and scalp. It's really painful, and lasts for hours, making lying down and sleeping really unbearable.

I realized after having the first attacks that it was somehow related to what I was eating, because I would usually get them after eating Chinese food or pizza, so at first I thought it was MSG. But then I started having them when I hadn't eaten MSG (to my knowledge). Just recently, I was eating more or less a paleo style of eating for about a month, and I was feeling great. I allowed myself a cheat meal that included wheat, and boom. I had an attack. I experimented with it again, ate clean for a few weeks, no attacks. And had another cheat day where I had bread and beer. I had a really bad attack that lasted a day and a half.

So, have any of you come up with more answers? Is this one way that a gluten intolerance can manifest? I've never had GI problems with gluten, and it's never caused a rash, which seems to be a more common symptom. I have been on a B12 supplement even when I had the last couple attacks... So I don't know about the neuropathy theory. Any insights?

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I get something similar but mine is almost always in my thigh area, I get a weird pain/prickle type feeling that is similar to a limb falling asleep but it hurts more and it is just an area of skin that does it. Very strange sensation. I have not been able to connect it to anything or any reason for it happening so my guess would be something to do with vitamin deficiency as well! 

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