Iga Level For 5 Year Old?

[GemBean]

Hi all,

I'm new here, my 5yr olds IGA test has come back positive for celiacs disease, we are waiting for an endoscopy before excluding foods. I was wondering what kind of IGA levels your little ones have?

Thanks!

[Roda]

Are to talking about the gliadin Iga or the Iga ttg test? My youngest son (age 6) who is gluten free had a total Iga (to validate the testing ) of 147.85 ref range 30-210 mg/dL, Tissue tranglutaminase IgA Ab of 16 ref range 0-15 U/ml, gliadin IgA antibodies 7 ref range 0-15 U/ml and gliadin IgG andtibodies 6 ref range 0-15 U/ml. The only test that was positive was the IgA tissue tranglutaminase antibody. He had the same test done 2 years prior and his IgA tissue tranglutaminase was only 2 ref range >19 positive. I did not get a GI consult or scope and put him gluten free after the results. I did do a challange 4.5 months after he was gluten free and it only lasted 3 days. He reacted within 12 hrs with a belly ache, moodiness, complete 360 in behavoir (having temper tantrums after they had stopped gluten free) and constipation x 5 days. The gluten challenge reinforced to my husband (who regretted putting him gluten free without the scope) that gluten is definately a problem for him and was glad to get him back gluten free. I think our allergist or ped will give us the "official" diagnosis based on the blood test and his reaction to the challenge. I was sucessful in getting the allergist to write a letter for the school for his need for gluten free and that is all I needed. The school is doing pretty well with it. They ended up making his whole class (they have daily snack in kindergarden) gluten free. No gluten snacks allowed and after lunch all the kids have to wash their hands so as not to contaminate shared surfaces.

[GemBean]

Hi,

Thanks for replying.

Sorry, i'm new to all this including these tests!

It was a TTG IGA, her level was 80 & was told the normal range was 0-10. Thats the only number they told me and they said that it highly suggests celiacs?

Gemma x

[Roda]

Hi,

Thanks for replying.

Sorry, i'm new to all this including these tests!

It was a TTG IGA, her level was 80 & was told the normal range was 0-10. Thats the only number they told me and they said that it highly suggests celiacs?

Gemma x

Yeah, that's a very positive test! If you are going to do the scope keep her eating gluten until it's done. My son's test was only one number over to be positive, so we still had a little gray zone. In some ways I do regret not doing the scope since I had it done, but on the other hand I already had a firm diagnosis for myself and I felt the positive blood test was enough. Sometimes there is no clear answer as one can find fault with it either way. After his challenge though it became clear as day that we made the right decision to put him gluten free. Have either you or dad (assuming you are mom, if not sorry dad) or any of her siblings been tested? All first degree relatives should be tested. Good luck with the scope. You can go gluten free after the scope is done.

[GemBean]

Yeah, that's a very positive test! If you are going to do the scope keep her eating gluten until it's done. My son's test was only one number over to be positive, so we still had a little gray zone. In some ways I do regret not doing the scope since I had it done, but on the other hand I already had a firm diagnosis for myself and I felt the positive blood test was enough. Sometimes there is no clear answer as one can find fault with it either way. After his challenge though it became clear as day that we made the right decision to put him gluten free. Have either you or dad (assuming you are mom, if not sorry dad) or any of her siblings been tested? All first degree relatives should be tested. Good luck with the scope. You can go gluten free after the scope is done.

Thanks! Very nervous about the scope!

My eldest was tested at 2 years old because she was having symptoms but was told it was negative, i'm guessing if it was redone it would be positive now! My husband and I will request testing too. We also have a 5 month old so will keep him off gluten till around a year old and get him tested too. Is it just gluten, or is gluten the main one?

It's hard to keep her eating gluten when we know whats causing it!! I'm researching foods we can buy and foods we will have to make ourselves for when we go gluten free. My eldest has sensory processing disorder and I'm pretty sure my 5 year old does too, we need to get her assessed. It makes feeding her very difficult as she refuses certain textures like all sauces, butter etc and doesn't mix foods.