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Massachusettschick

Has Anyone Else Suffered From Bi-Lateral Pleural Effusions?

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I am hoping that someone else may have had a similar experience. I am a 41 year old female who was diagnosed with Celiacs 11 years ago. I try to adhere to the gluten free life style though I often fall off the wagon, and three months ago developed a dry cough that coincided with a bout of my Celiacs acting up. After admitting myself to the ER for shortness of breath it turns out that I have recurrent bi-pleural effusions as well as ascites in my pelvis and a small amount around my liver. I have been tested for everything and my pulmonologist believes that this is linked to my Celiacs. They can't find t-cell lymphoma nor early onset of t-cell lymphoma. I have been experiencing symptoms for over three months and actively been seeking a diagnosis for the last month. Does anyone have any thoughts? I appreciate any comments!!!

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Welcome to the board. I don't know if those problems could be related. If this sort of thing happens because of inflammation (I don't know if it does) then it is possible that the inflammation that usually comes with a glutening might have contributed to the issue. I really don't know and perhaps someone with more knowledge can be more helpful

You really need to stick to the diet. Whenever you go off it your body is forming and flaring antibodies that can attack just about any organ. I do hope you are feeling better soon. If there is anything we can do to help you get and stay strict in the diet just let us know.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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