Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestaqure Question

Pamela48

By Pamela48
in Coping with Celiac Disease

Recommended Posts

Pamela48 Newbie
Pamela48
Posted

Hi everyone,

I have been following this forum for over a year now and have finally decided to register. Your post have really helped me this last year. I was diagnosed in February of 2009 at the age of 48 after having spent 7 days in the hospital. My GP thought it was IBS so she sent me to a GI who said he wanted to do an endoscopy, he took several biospy and then was happy with the results he received at our local labs so he sent them on to the UCSF and they said most defintely celiac. When I went for my results I had never even heard of celiac, he handed me a paper that kind of explained it and said to not eat anything with gluten and that was it, so I did my own research and with the help of my wonderful husband and youngest daughter I have been gluten free since, however a year later I am still having problems, so my GP sent me to new GI who had just moved into our city and he decided to do another endo and my first colonoscopy and he discovered I have a very twisted colon and my small intestine has not healed, so he told me to do more research. That is why I decided to register and ask a question. A good friend of mine discovered this website about digestaqure and it says it has this pill you take that can heal your villi. So has anyone heard of this or tried it. Your advice would be greatly appreciated.

Once again all of your post have really helped me through this last year and when other family memebers don't understand what your going through, I have always come to this forum and you all understand.

Thank you for listen,

Pam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I pulled up the DigestaQure website and came away feeling that if sounds too good to be true, it probably is. And I couldn't find anything about it on this forum. If it was that good, I think someone here would be shouting it from the rooftops.

ETA: Corrected spelling

kareng Grand Master
kareng
Posted

I googled it on the web. Looks like lots of complaints.

I don't know why the GI just said your colon is a twisted mess. See what you can find out yourself? You haven't healed your small intestine? He won't help you any further? A "miracle cure" pill isn't what you need. You need a new GI who knows what Celiac is.

IrishHeart Veteran
IrishHeart
Posted

okay....Let me get this straight...your GI doctor told YOU to do more research?? :blink: about what??

(ARRGH...for pete's sake!! )

You need a new doctor.

There is no magic bullet, I am afraid.

The only "cure" is a gluten-free diet and healing time. (And a doctor who knows what the hell he/she is talking about.)

Tell your GP this "doctor" is not knowledgeable about celiac and you need someone else right now to look at your endoscopy/colonoscopy test results and treat you properly.

Leli Newbie
Leli
Posted

DigestaCure looks like a gell cap of aloe and prebiotics (things the good gut bacteria need.) Shouldn't hurt and might help. Depends how much they charge for it.

If you've been ill for a while and your intestinal villi haven't recovered, you'll probably be having difficulty absorbing the nutrients you would need to heal. Are you taking any supplements?

Leli Newbie
Leli
Posted

Oh! I meant to say Hi! and, I'm new here too, but I went straight to look up DigestaCure. This is a great site, isn't it? I just found it, and while I wouldn't wish these problems on anyone, I'm still glad I'm not alone with all of this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,247
    • Most Online (within 30 mins)
      7,748
    Jbamf8791
    Newest Member
    Jbamf8791
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      You have one gene for Celiac.  You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac.  HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others.   You have Celiac symptoms of reacting after gluten.  You said "I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches)."  And your anti-thyroid antibodies increase after gluten exposure.  While tTg IgA does not directly attack the thyroid, gluten exposure does trigger the  immune system to produce antibodies against the thyroid in genetically predisposed individuals.  You did not eat sufficient gluten (10 grams of gluten per day for two weeks minimum) to raise the autoimmune antibodies to the point they can be measured in the blood, so your blood tests may well be inaccurate.  You could choose to continue the gluten challenge of 10 grams a day for at least two weeks and get retested.   At the very least, you know that gluten is harmful to your thyroid, and because you are genetically predisposed to Celiac disease, a strict gluten free diet would be beneficial for your overall health.  
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thanks @Scott Adams! I guess my question now is: do the celiacs who can get away with regular contamination without villi damage as you mentioned have to be strict about cross-contamination ? 
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you very much @knitty kitty! I'm glad you brought up the point about histamine. I have been taking an antihistamine after meals where I don't feel so good and never knew why it helped so much. At first I thought I might have a food allergy, but I recently did a food allergy test and I actually have ZERO food allergies. Regarding your last point about the stages of grief, are you saying it's likely that I have celiac? I have Hashimoto's BTW and I know for sure that gluten causes an autoimmune response to my thyroid as my anti-TPO and anti-Tg go up and my throat feels swollen. Could the symptoms be due to that autoimmune response?
    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...