Negitive Blood Test Now What?

[Calmom]

My sons blood test came back negative. Dr. wouldn't even biopsy and even snapped at me when I requested one. I made it clear that I had tested positive and he had the same exact symptoms as I do/did, only he has had the symptoms since infancy. I didn't develop symptoms until later. She just got made and said, "He doesn't have it alight, you get it now? In a tone I found inappropriate.

I have a friend who's husband is a holistic practitioner, and while we were at their house today he confirmed my son was gluten intolerant, lactose intolerant and soy intolerant. Unfortunately his methods aren't accepted as medical evidence.

Here is the problem. My son spends one week at dads and one week at my house, back and forth. Dad and step mom refuse to be "inconvenienced" with out a positive test. He always comes to me feeling sick, but after a few days at my house being gluten free he starts to feel better.

I don't know what to do. I have thought about going to the courts, but what can I do with out evidence?

[mushroom]

Any chance of taking him to a different doctor? One who might be more open to further investigation? Just for interest, what test(s) did she order? Can you get a copy of them and post results and ranges?

[samie]

I would try to change doctors and get new tests done and if you wanted to get the biopsy. If you can swap make sure they do the full celiac panel. Then you can get a paper stating his diet for dad.

[cyberprof]

Here is the problem. My son spends one week at dads and one week at my house, back and forth. Dad and step mom refuse to be "inconvenienced" with out a positive test. He always comes to me feeling sick, but after a few days at my house being gluten free he starts to feel better.

I don't know what to do. I have thought about going to the courts, but what can I do with out evidence?

I really feel for you because my son tested negative but we didn't have to deal with the father/step-mother complication.

BUT...your sentence above has me wondering: If he doesn't eat gluten at your house, he may not be getting enough for a positive test. If you are going to have him re-tested, you would have better luck if he was on a gluten-heavy diet.

Other ideas would be to find a sympathetic doctor who will diagnose based on heredity, and response to the diet. You should also try to get his genes tested to confirm that he has the celiac gene. Have you gone to a celiac center or a teaching hospital? Perhaps you'll get lucky and have evidence to show at court.

Good luck and good health to your son.

[Mummyto3]

My sons blood test came back negative. Dr. wouldn't even biopsy and even snapped at me when I requested one. I made it clear that I had tested positive and he had the same exact symptoms as I do/did, only he has had the symptoms since infancy. I didn't develop symptoms until later. She just got made and said, "He doesn't have it alight, you get it now? In a tone I found inappropriate.

I have a friend who's husband is a holistic practitioner, and while we were at their house today he confirmed my son was gluten intolerant, lactose intolerant and soy intolerant. Unfortunately his methods aren't accepted as medical evidence.

Here is the problem. My son spends one week at dads and one week at my house, back and forth. Dad and step mom refuse to be "inconvenienced" with out a positive test. He always comes to me feeling sick, but after a few days at my house being gluten free he starts to feel better.

I don't know what to do. I have thought about going to the courts, but what can I do with out evidence?

I'd report her! She was completely unprofessional in my opinion. I would also seek a second opinion, you're entitled to one.