Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Reading My Pathology Report...


color-me-confused

Recommended Posts

color-me-confused Explorer

A doctor for one of my kids, upon hearing of my positive biopsy/negative bloodwork test results suggested I seek a 2nd opinion for the celiac diagnosis. I got ahold of my pathology report and it's interesting stuff. "intraepithelial lymphocytosis especially near the villious tips" which suggests treated or clinically latent celiac sprue, NSAID use, h. pylori infection, lymphocytic colitis, and systemic autoimmune disease. The stomach biopsy showed zero h. pylori infection. I gotta say everything on this list is pretty easily ruled out. Then there was my long list of health improvements due to eating gluten-free and the harsh side effects of mild gluten exposure that really pointed my gastro towards celiac disease. I also tested for osteopania in my hip (weird in a male in his 30's!), low vit D, and low potassium.

I have a followup biopsy occurring soon to see if the inflammation has reduced on the gluten-free diet. I tested positive for the DQ8 gene and my father had diseases related to celiac (type 1 diabetes, fatal gallbladder cancer) along with lifelong digestive trouble. What's the chance that I'm merely gluten sensitive, and not actually a member of the celiac club? I suppose a 2nd opinion can't hurt but I won't do anything til after the upper GI.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi colorme,

To answer your question, zero.

You have celiac disease with a confirmed biopsy. I can't think of a single reason to go for the upper GI unless you're concerned about ulcers or GERD. The doctor that suggested you get a second opinion doesn't have a clue about celiac disease.

Unfortunately, that's fairly common.

Link to comment
Share on other sites
Lisa Mentor

Most of us have had internal issues for some time and perhaps many years. And endoscopy and colonoscopy, in my opinion, would be wise.

I'm not quite sure where your pathology report stops and you comments begin. But, you might look into NSAID sensitivity or over use. Some people can't handle it....interesting stuff, though. :)

Link to comment
Share on other sites
color-me-confused Explorer

Most of us have had internal issues for some time and perhaps many years. And endoscopy and colonoscopy, in my opinion, would be wise.

I'm not quite sure where your pathology report stops and you comments begin. But, you might look into NSAID sensitivity or over use. Some people can't handle it....interesting stuff, though. :)

I rarely take NSAIDs any more than one dose in a day, hardly more than once or twice a month for occasional back pain. I believe that intestinal damage from them is usually seen in people taking large quantities regularly for things like arthritis.

I'm in the position of "if it walks like a duck, talks like a duck...", you know? I suppose the alternative would be going back on gluten, suffering, and waiting to get sick enough (or become diabetic?!) to get a 100% positive biopsy and blood test. No thanks!!

Link to comment
Share on other sites
kareng Grand Master

I rarely take NSAIDs any more than one dose in a day, hardly more than once or twice a month for occasional back pain. I believe that intestinal damage from them is usually seen in people taking large quantities regularly for things like arthritis.

I'm in the position of "if it walks like a duck, talks like a duck...", you know? I suppose the alternative would be going back on gluten, suffering, and waiting to get sick enough (or become diabetic?!) to get a 100% positive biopsy and blood test. No thanks!!

But...you did get a positive biopsy. You might want a follow- up one to see if all is healing well.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,460
    • Most Online (within 30 mins)
      7,748

    BrittanyH
    Newest Member
    BrittanyH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
×
×
  • Create New...