Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lymphoma

Schatz

By Schatz
in Related Issues & Disorders

Recommended Posts

Schatz Apprentice
Schatz
Posted

I just read the book Celiac Disease: A Guide to Living With Gluten Intolerance which was published in 2006 or 2007. In the book it stated that the risk for lymphoma does *not* decrease with a gluten free diet.

I have been having constant anxiety since reading this. Everything else I read just simply states that cancer risk decreases with a gluten-free diet. Now I read that the only cancer that doesn't is lymphoma.

Is this correct? Is this the current information?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I hope that is not the case. How depressing!

ravenwoodglass Mentor
ravenwoodglass
Posted

From what I have read in peer reviewed journals (sorry I don't have a link to the info) if you are strict with the diet your risk of lymphoma decreases and by year 5 is the same as the non-celiac population.

Gemini Experienced
Gemini
Posted

I just read the book Celiac Disease: A Guide to Living With Gluten Intolerance which was published in 2006 or 2007. In the book it stated that the risk for lymphoma does *not* decrease with a gluten free diet.

I have been having constant anxiety since reading this. Everything else I read just simply states that cancer risk decreases with a gluten-free diet. Now I read that the only cancer that doesn't is lymphoma.

Is this correct? Is this the current information?

Raven is correct. After 5 years of a strict gluten-free diet, you go to the same risk pool as the general population.

This is a subject that really irks me as I think doctors like to scare the hell of people to keep their appointment books full. People should not go through life worried about cancer. Get screened, if that is what it takes to ease your fears but no one should be overly worried that they'll get cancer because they have Celiac or whatever else can lead you down that path. Live well, eat healthy, keep moving and no unnecessary worries. That should help keep you out of a doctors office. ;)

Schatz Apprentice
Schatz
Posted
  • Author

Thanks for the reassurance. That book threw me off and upset me.

My father in-law is battling cancer right now so it's a fearful subject for me.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the reassurance. That book threw me off and upset me.

My father in-law is battling cancer right now so it's a fearful subject for me.

Sorry to hear that. I hope he wins the fight.

(((((((((((((((((((HUGS)))))))))))))))))))))))

bartfull Rising Star
bartfull
Posted

When Mom was diagnosed with Alzheimers, the doctor told me I had a 25% chance of getting it. But then he went on to explain that the general poplulation with NO first degree relative who has it, still has a 15% chance. That brought the worry down to a reasonable level.

As a matter of fact, the worry is zero because we all have to die of something, none of us gets to choose when or how, and to me, the important thing is how we LIVE. Heredity brings me an elevated chance of Alzheimers, leukemia, asthma, and heart disease. Heredity brings other risks to other people. LIFE brings all kinds of risks. But I think the biggest risk of all is not living it to the fullest, and that means (to me), not wasting one minute of it worrying about something I can't change.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...