Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Watch (The Works) Not Gluten Free


bentramer1981

Recommended Posts

bentramer1981 Newbie

Just ate at First Watch in Shawnee, KS. and had "The Works" off of their gluten free menu with a coffee (black) the food tasted great as was the service unfortunately I had a gluten reaction. My head is so foggy right now I feel stoned, had to go to the bathroom with quick onset bowel movement to say the least. I'm not sure if it is CC or not but I just wanted to warn anyone else so they don't suffer the same as I am right now. Instantly feel debilitating tiredness, I'm going to email Fiirst Watch so they are aware that something in the food contains gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bentramer1981 Newbie

Here is my email sent today to Jessica Repogle from First Watch to hopefully get this problem fixed, I'll post response when I get one. I sent her my expierence above.

I wanted to make you aware of a reaction that I had eating at your Shawnee, KS. Location so you might take a closer look at your ingredients/preparation of gluten free items. I posted this Saturday to prevent other celiacs from getting sick like I did. I

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,506
    • Most Online (within 30 mins)
      7,748

    Lj314159
    Newest Member
    Lj314159
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mettedkny! Your ttg-igg numbers are elevated but what about your ttg-iga numbers? Were your ttg-iga numbers elevated at your original diagnosis? The reason I ask is because elevated igg antibody test scores are more likely to be caused by something else besides a celiac reaction to gluten. The ttg-iga test is considered to be the centerpiece of celiac disease blood antibody testing. But some people are seronegative for the iga celiac tests, particularly if they are iga deficient. If they are iga deficient, the igg tests can be helpful. Have you ever had a "total iga" test run to check for iga deficiency?
    • Mettedkny
      Not sure where to start - been diagnosed for 17 years, and for 16 years my bloodwork has been perfect. Last May I started on HRT (estrogen patch & progesterone pill) for post menopausal symptoms, and to help with mild osteoporosis. In June my Gliadin IgG numbers suddenly went up to 59 (from previously being below 5 for 16 years). Did a deep dive on the progesterone pill manufacturer (Aurobindo) to ensure that the medication IS gluten free - and was told multiple times that there is no gluten in the pills. The pill is the ONLY thing that has changed, and my son, who is also celiac has perfect numbers.  Scoured my life to try and find out where the gluten could be coming from and the only thing I found was a tea I drank that had "possible wheat straw" (had been drinking this tea for about 5 years with no issues - and was confirmed by the manufacturer that their tea is certified gluten-free despite the "straw") - cut the tea out thinking that it MUST be the tea. Repeated the blood test 3 months later and it dropped to 55 - not indicative that the gluten has been found and removed from my diet. Had bloodwork done again yesterday and it is now 95 😳 I am completely floored. WHERE is it coming from??? I am SO careful. Would NEVER cheat, don't eat out and like I said, my son has NO issues and his number is 3 (as of yesterday). Has anyone had a problem with progesterone pills? It is the only variable that I can think of, but how do I prove that it is the problem without discontinuing to take the HRT (which I really need for post menopausal symptoms, sleep, anxiety, brain fog and hot flashes).
    • Nicbent35
      That’s a good thought, I didn’t think of that aspect of waiting longer! Thanks 
    • trents
      Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to removing gluten and not something else that will pass such that you see a reversion to former behavior and symptoms.
    • trents
      If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result.  Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption would not be the advice that the vast majority of GI docs would give you. If I were you, I would seek a second opinion before resuming gluten consumption. 
×
×
  • Create New...