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Daisy227

Hoping For Negative Biopsy

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My doctor thinks I have celiac disease he didn't do any blood tests just skipped straight to the biopsy, I'm still waiting on results but I am really hoping it comes back negative. He told me to avoid gluten while I wait, I feel better but now I think I have some kind of intolerance to milk? Never noticed before because I just felt bad all the time. Anyway I've been kind of lurking on these boards and this is my first post... I've noticed so many people are upset that they have negative results back and I find this so odd... I'm really hoping for a negative result as I don't want to have an autoimmune disease.

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False negative rates are pretty high for biopsies and for blood work. Your doctor is a good one for telling you to try the diet. You say you are feeling better on the diet so do keep with it even if the tests are negative. It is common for us not to be able to digest dairy at first. After you have healed a bit you will most likely be able to add it back in.

While having celiac is not a thing to be happy about being diagnosed and gluten free is. Not only will you live a longer life but it will be much healthier and happier. It does take some getting used to but we are here to help in any way we can.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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the lactase enzyme is made on the tips of the villi, and in celiac the tips of the villi are damaged.....that is the connection with milk.

But some people also develop a casein intolerance, which is not lactase related of course.


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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