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Intolerent Or Allergic To Something More Than Just Gluten


Snafu

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Snafu Newbie

Hello friends--

Recently, I came into contact with gluten through CC after having been doing quite well. This was a week ago. The past five days have been progressively worse in terms of feeling so nauseated and bloated that I cannot seem to catch my breath or breathe properly, as well as severe pressure in my head, extreme fatigue, aching back and general weakness. When I don't eat, things get better. However, after a normal, gluten-free and Dairy-free meal, the same symptoms start up again.

I'm afraid that my Celiac issues are triggering or branching out into other intolerances? How is the best way to figure this out? I'm so tired of feeling like I'm swimming around inside my own head because of pressure inside it, not being able to breathe, and the gassy, bloated feeling which comes with every meal so far. I would try a tea and broth diet, but am afraid of possibly making things worse instead of better? Not to mention, providing adequate nutrition while working at a job where I'm on my feet constantly?


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Juliebove Rising Star

You say you are eating a normal meal. What all is involved with that? If you are eating the same things in each meal, one of them could be the culprit.

Gluten is not an issue for me. I do have food allergies and gastroparesis. When my stomach is acting up, I pretty much limit myself to rice and chicken broth. Maybe a bit of cooked chicken breast. I know these things don't make me ill.

What you should probably do is pick something off of the BRAT diet and stick to that one thing for a day. Maybe not toast because the gluten-free bread can contain a variety of things. But applesauce (plain, unsweetened), plain white rice, or bananas. If you feel okay in eating that one food, then eat it for a couple of days and then add another food. You don't want to add too much at once. But on the other hand you don't want to keep this up for too long or you'll get nutritional deficiencies.

Given that IgG allergies or intolerances can have a delayed reaction, sussing out the culprit or culprits can be tough.

tom Contributor

I'm afraid that my Celiac issues are triggering or branching out into other intolerances? How is the best way to figure this out?

Keep a food diary. Also, trying to eat simpler helps.

I ended up mostly writing it w/ a phone keybd, but also used little notebooks.

There'd be times i'd read back thinking "wait wasn't I ok last time I ate this?" Only to find I wasn't fine but was leaning twds blaming something else - or vice versa somethingorother.

Things can be learned w/ a food diary that aren't learned otherwise.

Roda Rising Star

Your system could just be out of wack from the gluten CC. It can take awhile for some to recover. For example when I get CC'd, depending on the amount, my glutening symptoms can last for up to two weeks. I have to be extra careful with what I eat since my stomach and intestines are so sensitive. Once it passes I can go back to eating normally(gluten free of course). :P Hope this passe soon for you!

dilettantesteph Collaborator

I second the thought that it might be something in your normal gluten free meal. Have you changed anything about it recently? Changed brands of something?

I also second the idea of keeping a food diary. That is very effective for figuring out what is bothering you, whether it be gluten cc or other food intolerances.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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