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tom last won the day on November 10 2012

tom had the most liked content!

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  1. Hi smpalesh, I'm wondering which types of Amy's you're eating. I suppose it's been awhile since I've seen posts about Amy's frozen foods being problematic for the posters but I also haven't been reading as much here lately. For years it just kept coming up. Never saw much about their other lines. Does anyone know if they changed? Any long-timer REtry an Amy's frozen years after thinking they were a potential cc source? I've been tempted, but I don't think I even got as far as checking the ingred list for everything else I don't eat.
  2. Hi Kocoyboy, Hope you can feel better soon, it's tough when not seeing improvements. Honestly, a week & a half is often not long enough to get settled into knowing what to avoid & to answer "where/what CAN I eat?" Is there gluten-free food at school? If you're eating much processed food, would you be able to simplify your diet? For as easy as it can be, that can help a lot. You may need to be dairy-free for a while. The Dr, imho, should've mentioned that.
  3. Haven't seen anyone mention that it can be good, just in general, to let a specialist take a look under the hood, so to speak, since we already know things haven't been well. I feel better knowing I've got a baseline eval available for future comparison.
  4. Oops what'd I miss, reigning in absentia? Wayyy too busy w/ Ronaihna messin w/ his cousin Monti's head. Hope it just blows over. Ohhhh Gnikkers, hugs from me too. Screw that boiler tho, yah? Russel (hehe) awesome that the work hrs didn't change. How awful/worrisome that something as potentially impactful on your ds could be so cavalierly changed.
  5. Nope. You're right about the part that it's significant that your immune system has never had a break from gluten. There's no need to increase your gluten intake beyond the 'some every day' you're already getting. Good luck w/ the testing!
  6. I'm wondering which type of Amy's because I think I used to see posts questioning cc in Amy's frozen foods but almost never the canned ones. There's a canned Amy's gluten-free organic southwest chili I've had plenty of times w/out a problem.
  7. I've been eating Tjoe's almond butter regularly w/out issue for probably 6 yrs. Mostly the Crunchy, tho I doubt creamy vs crunchy is a factor. This label has the shared equipment warning for peanuts, tree nuts & soy. No mention of wheat. I don't know if an organic one should be any different w.r.t. shared equipment. Isn't it a voluntary declaration? A company can use shared equipment for EVERYthing & not put it on the label at all. I did have a horrible reaction once to a cashew butter I'll never try again & never knew what the prob was. Otherwise never a problem w/ cashews or 'shewbutters. One almond butter brand kept pissing me off w/ hidden bits of almond shells, but not sure if it was an organic one. Maybe Marantha(sp?). Hope you find one that works cuz it sure is a no-fuss easy & portable way to get something in the belly. I just dig in w/ a spoon at work.
  8. I think the main thing right now for you is to INSIST on celiac testing before trying gluten-free, or the testing will become ineffective. Oh dang, just saw that you may have already had the appt today. How'd it go?
  9. If it didn't cause an intolerable or even highly significant rise in symptoms, I suppose that's what I'd do, but I usually shy away from giving specific recommendations. I've seen occasional but rare posts of ppl affected longer term, after the challenge, who might regret doing it, but don't recall specifics of their early challenge symptoms. Celiac testing is unfortunately still a bit of a crapshoot, but hopefully the forum has enough info for ppl in your position to make an informed decision & not only working off a Dr's (I don't mean yours specifically) outdated or misinformed info.
  10. Hi Mirjam, if you do restart on the gluten, remember it doesn't take a lot. I've been seeing studies on it for a while & here's a new one mentioned today in the forum's Publications Section. http://www.health.harvard.edu/blog/simple-blood-test-helps-bring-celiac-disease-out-of-the-shadows-201212205712 "Even a small amount of the protein can stir up trouble. A University of Maryland study ( http://www.ncbi.nlm.nih.gov/pubmed/17209192 ) showed that just 50 milligrams (mg) of gluten
  11. I think it's safe to say it'd be more unpleasant if you were re-introducing gluten after feeling increasingly healthier during weeks or months 100% gluten-free. (Slight assumption in there on it being celiac) You did say you never really went gluten-free, right? That'd be why it's not particularly unpleasant.
  12. Well that's a bit off-topic & curiously defensive. Someone posted that "often ppl say 2 slices/day" & I add the single cracker quote from your fav site & that's a bad thing? (Sarah had asked whether we'd "recommend amping up the ingestion of gluten before the test" after having explained that she's never been gluten-free - it's not a "re-introducing gluten" situation - it's a "don't stop eating gluten yet" situation.)
  13. Yeah, I thought it'd be easy to check glutenfreedrugs.com too. Apparently Greenstone was one of 3 mfgs when it started going generic in 2006. A thread here from '06-'11 at least doesn't have anyone saying they reacted, tho it looks like Lupin wasn't in the game yet. I see Lupin mentioned as mfg of OTHER generics, but wow this really sucks for this to be difficult at all! Wish I could help.
  14. Looks pretty good so far. (Some parts under progress) From what I've seen it's all post-Dx info. The Level 1, 2, 3 architecture could work pretty well, letting ppl easily choose how detailed the info is for each topic. http://bidmc.org/CentersandDepartments/Departments/DigestiveDiseaseCenter/CeliacCenter/CeliacNow.aspx