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frustratedgirl

Could It Be Celiacs?

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Hello, This is all new to me, just wondering if there is anyone else out there with the same symptoms I have..I have gone to the Dr. two years ago with symptoms of Chronic fatigue and lethargy, Cotton Mouth thirst, Brain Fog, Anxiety, waking up exhausted, and a "heavy feeling" like gravity was just always pulling me down....The Lethargy was worst of the symptoms, just getting up the stairs, or doing laundry took so much out of me, this caused me to do a lot of heavy breathing as well...And I am not at all over weight..At that time, I was a 40 year old active woman who was surprised to hear that I was Pre Diabetic and had hypoglycemia...The Dr's just put me on an All Wheat Diet...."No White, No Sugar.." Unfortuneately, I still had all the same symptoms, and they were getting worse..I felt like no one was believing me, including my husband..This was really causing me to shut down...Fortuneately, my husband came around, and told me that we needed to figure this out......Two years later, Went to the Dr. again, I STRICTLY told her, I new it had to do with my food intake..Of course, she ignored me, sent me for blood work, and sent me home...Once the blood work came back normal, she was pretty much done with me..Frustrated, however, my husband and I decided to lay off the wheat and WOW, Two weeks now, and I feel GREAT....I changed Dr's, and am finding he is ignoring me as well regarding the food intake..He wants me to get tested for MS, or he thinks it's Fibromyalgia..However, I really don't want to waste anyone's time, I really think it has something to do with wheat or Gluten, or both.....BTW, my sugars are all in the normal range as well...Please help....I am so frustrated..

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Fire this doctor's insurance money grubbing A$$, immediately, and find one who WILL work with you on your gluten intolerance. Don't bother making appointments or going to somebody who is just there to milk your insurance for whatever he or she can get out of it, extending the fake "diagnostic process" over as many years as possible, just for profit. Mine got to the point where I was having severe MS - type neurological symptoms, including ataxia, and in spite of my telling the doctors I had a distinct "problem with grains," this is when I discovered that my former dishonest as he(( neuro would actually withhold test results under the guise of "no appointments available for 2 months," "canceled appointments with no warning" and lie to me, to my face, regarding certain tests. Turns out I had brain lesions, which are typical of advanced celiac, and she actually told me I was a head case making things up, having no idea I had gotten said test results and guess what, they were not MS. Bye.

Cotton mouth can be a symptom of Sjogren's, a related condition which sometimes develops with celiac/gluten intolerance.

We also tend to all be slightly hypo- thyroid, and can develop auto immune thyroid disease which will not show up in the regular tests unless they test for ANTIBODIES, not just the levels of the different hormones. This can also make one exhausted.

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I had many of your symptoms and your problems with doctors, only I was 58 years old. Symptoms kept mutlipling, with more weird things happening everyday. Neighbor kept telling me it was gluten. I am self diagnosed as I could not do any more doctors or specialists, I was literally dying. I tried the diet and have steadily improved and now 61 and healthy, my energy is back. All my many symptoms have disappeared. I eat mostly whole foods, no dairy, no soy and only certified gluten free labeled products, that is the only way I stay healthy.

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