Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

My Story


Glutiator

Recommended Posts

Glutiator Newbie

Hi,

I'm new to this very helpful forum. Greetings from Germany!

To cut it short: I'm 28 and for 12-13 years I'm experiencing a huge range of symptoms...

Anxiety, social phobias, brain fog, problems with concentration, extremely SLOW in everything I do, and always a feeling of senselessnes...

Joint pain, tooth problems, ear aches, bowel problems, infections, alcohol-intolerance, red eyes, gallbladder pain!!! . Like someone would push his fist in that area. Night sweat, non-existent libido...it was not so funny... ;)

And very very pale skin...almost unable to tan. And as a kid I had a very nice skin and tan! This always seemed odd to me...how could I have lost something like skin color?? Does this symptom sound familiar to anybody reading this??

As almost everybody here I can look back on a "doctor's office-odyssey". I have seen like 25 doctors (different departments) in that time and my sad conclusion is: 0% of them could help me. Why do I pay my health insurance contributions??? + I spent thousands for stuff I didn't need or my colon couldn't absorb!

:blink:

Now for the positive things I can say. I stumbled upon a gluten related website and I was shocked! Exactly my problems were described there...

I'm living gluten-free for 5 days now and I already feel an uplift in my mood!!! This is NO placebo! This is sooo cool! If I'm finally on the right track now, then I'm the happiest guy on this planet! :P

I hope that I will gain some pounds very soon (I'm very thin) and that my skin looks healthier...

What do you think? Do you know these symptoms? Any feedback concerning my story is appreciated!

Best regards!!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hello..and welcome!

Yes..your symptoms could be from gluten. If you want to be tested for Celiac disease you need to stay on a gluten diet until after your tests are done. For some of us, it's better to know if we have Celiac disease so we are more determined to stay on a gluten-free diet, so testing is important.

Even though you have seen many Dr.s they may not have thought to test you for Celiac disease? Most Dr.s don't think of it.

Once you've had tests done, go gluten-free no matter what the results are. Some of us have negative blood tests, but can't tolerate gluten anyways.

Good luck to you! :D

Glutiator Newbie

Thanks for your thoughts! Hmm...but I already have begun to eat a gluten-free diet and I began to feel better...if testing means that I have to eat gluten again now...then I think I will skip the test... :unsure:

Glutiator Newbie

Ah, and I have slightly "cornificated" skin on my finger joints. And the ring fingers both have these dry spots on the side. My feet are affected too.

And one psychological symptom: I cannot cry. Didn't cry for years! Does this sound familiar to you??

Best regards!

Bubba's Mom Enthusiast

Ah, and I have slightly "cornificated" skin on my finger joints. And the ring fingers both have these dry spots on the side. My feet are affected too.

And one psychological symptom: I cannot cry. Didn't cry for years! Does this sound familiar to you??

Best regards!

Gluten can affect every system in your body. It can cause a variety of neurological symptoms, like social anxiety, unusual emotions, and various skin issues as well.

Your paleness, that mentioned earlier, may be from anemia? It's not a good idea to supplement iron without having a test for anemia though. Too much can be harmful. Eat a diet rich in iron and as you heal it should start to absorb?

Glutiator Newbie

Gluten can affect every system in your body. It can cause a variety of neurological symptoms, like social anxiety, unusual emotions, and various skin issues as well.

Your paleness, that mentioned earlier, may be from anemia? It's not a good idea to supplement iron without having a test for anemia though. Too much can be harmful. Eat a diet rich in iron and as you heal it should start to absorb?

Hmm, my blood values (last year) were normal...concerning iron. I will just wait and eat as healthy as possible. (Organic and preferably unprocessed food) But I'm doing fine with my diet. I think the gluten thing is most likely the solution to my mysterious problems.

tom Contributor

...

I'm living gluten-free for 5 days now and I already feel an uplift in my mood!!! This is NO placebo! This is sooo cool! If I'm finally on the right track now, then I'm the happiest guy on this planet! :P

...

Awesome

Always great to hear of the breakthroughs. I think it's hard for a lot of ppl to imagine what a difference such common foods can make.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...