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Anyone In Cleveland?

NickMcKinnis

By NickMcKinnis
in Meet Up Room

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NickMcKinnis Rookie
NickMcKinnis
Posted

I am still pretty new to this site, and was wondering who might be in the cleveland area.

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mamaw Community Regular
mamaw
Posted

Hi

I'm not fromCleveland but seem to be in that area some... They have a great gluten-free support group...

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NickMcKinnis Rookie
NickMcKinnis
  • Author
Posted

Hi

I'm not fromCleveland but seem to be in that area some... They have a great gluten-free support group...

I have heard that there was a support group but I don't know much about it. Do you by chance know where I could find out more info about it?

Thank you!

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mamaw Community Regular
mamaw
Posted

Open Original Shared Link

They also are having a vendor fair September 9th...Also make a trip to Tommy's in Ridgeville for the gluten-free buffet!!!!

In Canton another short trip is the Raisin Rack that has a large large selection of gluten-free......Denise the gluten-free manager runs a gluten intolerance group there... She is a friend of mine...

Cindy Kollar Klass I believe runs the Cleveland Group, also a buddy of mine!!!

hth

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NickMcKinnis Rookie
NickMcKinnis
  • Author
Posted

Thanks for taking the time to give me that information, I will be sure to check into it.=)

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mamaw Community Regular
mamaw
Posted

welcome....

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StephanieL Enthusiast
StephanieL
Posted

Open Original Shared Link

This is another group in the area.

Welcome!

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  • 2 weeks later...
sharilee Rookie
sharilee
Posted

I am still pretty new to this site, and was wondering who might be in the cleveland area.

Welcome, I am in Akron. I see others have already posted the links to the Cleveland area support groups, they are great groups.

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kaitlynrose Rookie
kaitlynrose
Posted

I am from rural Northeastern Ohio. There seems to be NO celiacs in my area! I only know one, and she happens to be my younger cousin... I used to shop at the Raisin Rack, but the drive is just a bit too long. Too bad, because their selection is wonderful. Now I shop at Seven Grains in Tallmadge, and I love it. Does anyone happen to know if there is a group for teens with Celiac in our area?

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  • 2 months later...
amymarie124 Newbie
amymarie124
Posted

Hi,

I am new to this site as well, and from the Akron area. Was wondering if there is a support group around the akron area?

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  • Recent Activity

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    • Sarah Grace
      Sarah Grace

      By Sarah Grace · Posted

      Many thanks to everyone for the advice received and especially to Knitty Kitty.  I have ordered a one month supply of Benfotiamine and very much look forward to trying it.  The expression "I felt like I was dying" really resonates with me.  I have other symptoms which I didn't mention, such as vertigo and brain fog which are referenced by knitty kitty in her very detailed post. Clearly, there is other stuff that I should be trying, but I can only cope with one thing at a time at present! I will be back to let you know if the Benfotiamine, which should arrive in the next few days, has had any impact.🙂
    • glucel
      Sarah Grace

      By glucel · Posted

      OK maybe I will look at future blood test just for historical changes. I am taking b vitamins as I mentioned in my other post to you. Definitely interested in Benfotiaminefor intestinal issues. However I already seem to be feeling some improvement in diverticulosis. Constipation gone but I think that resuming glucosamine may have something to do with that as well as general healing. Beans are antagonizing for me but I eat them anyway every few days in the form of pasta as well as baked beans. gluten-free for 4.5 months so still experimenting. Thanks for the info.
    • glucel
      abnormal weight loss

      By glucel · Posted

      Thanks @knitty kitty, I read your v b info with much interest for last few months. Here is my weight per event: sept 8, 2022- 181 lbs june 1, 2024 gluten free july 4- 143.5 lbs july31- changed from regular b to methyl folate and b12. oct 8- 150 lbs So weight hopefully coming back albeit very slowly. So probably my villi may be healing and methyl helping although also eating potato chips every few days so that is probably helping too.  Taking 100 mg of b1 along with complex. I took all thiamine maybe 100 or so tablets. Brain fog diminished some and it seems swallowing trouble also diminished. Stopped taking it couple months or so ago and did not notice any reversals. I think I will finally look into bentofothiamine. Also eat 1/2 ounce liver every morning for additional v b support.                                  
    • knitty kitty
      abnormal weight loss

      By knitty kitty · Posted

      Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency.  Our bodies use more Thiamine when we are ill and stressed.  Switching to a gluten free diet can also result in a lower intake of Thiamine.   Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2874825/ Gluten-free diet intervention reduces thiamine intake in two weeks... https://pubmed.ncbi.nlm.nih.gov/34583628/ This study found normal people, without Celiac Disease and malabsorption concerns, had a drop in Thiamine after starting a gluten free diet.  They went back to eating a gluten containing diet.  We don't get that option.  Gluten free processed foods are not enriched with vitamins like gluten containing counterparts.  Supplementing helps boost your absorption of essential vitamins and minerals.
    • knitty kitty
      Maybe celiac, maybe just ncgs?

      By knitty kitty · Posted

      Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too.  Celiac Disease is genetic.  If you've got celiac disease genes, further testing is warranted.  Some people have Celiac genes, but don't have active Celiac Disease.  If you've got symptoms, your genes are probably activated.   Diabetes, anemia and Thiamine deficiency can cause false negatives on antibody tests.  Some people with Celiac Disease are seronegative.   Thiamine deficiency can cause constipation and gastrointestinal symptoms.  Magnesium supplementation can help with that, too.  Nutritional deficiencies like these are common in untreated Celiac Disease. Keep us posted on your progress!
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