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Gluten Free Girls

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Gluten Free Girls Apprentice

Myself, and our two daughters have Celiac Disease. Our girls are 13 and 7. We're one year into this wild ride and we have yet to meet anyone else with this disease. I want to start a support group of sorts, so that my girls can meet other kids with Celiac Disease and I would love to meet other parents as well. We joined the Atlanta ROCK group but we've found that they don't have frequent events. Are we the only Celiacs in the Atlanta area? We would love to meet some Celiac folks like us!


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MitziG Enthusiast

Well, I am in Iowa, mot GA, but I know my 13 yo daughter would love a celiac pen pal! Myself and my 8 yo son are also celiacs, so there is definitely common understanding! Poor hubby is gluten free by default!

KatieL1321 Rookie

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

MaryJones2 Enthusiast

Check out the Atlanta Gluten Free Dining Club (I think that's the name) on meetup.com - they have monthly events and lots of information on where to find local products, restaurants, doctors, and gluten free events. There is also the Metro Atlanta Celiacs group which maintains lists of gluten-free friendly restaurants and knowledgeable celiac doctors among other things. They also have events as well.

melaniesilvers Rookie

We live about 45 min north of Atlanta. My son is four (not close to the ages you have) but I would love to find out where you eat and what you buy. There is also a 7 yr old girl that lives close to us that was diagnosed in April.

shauniscrazy Explorer

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

I dont know if i am a Celiac yet or not but i am allergic to gluten and i would like to have someone to talk to so i can learn more i am 16 and live in TN.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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