Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Multiple Negative Tests Daily Hive


Nodiagnosis

Recommended Posts

Nodiagnosis Newbie

Hi everyone. For 3 months now I get hives everyday along with swelling and aching joints. I have seen multiple specialists and had many blood test done. I can no longer handle what's wrong with me. many doctors have said that they suspect lupus or Celiac disease. I believe that this is an allergic reaction to something specifically something I'm eating. nothing in my life changed 3 months ago. so I am considering what I do daily , everyday I consume wheat and egg products. I am hoping eliminating the Pooh will eliminate my symptoms. Along with hives, swelling and aching joints, my muscles ache and I am very fatigued. I cannot remember or anything or focus. The swelling occurs in my mouth and throat as well. I also have experiened chest pains and bowel changes. There are times when I have swelling and pain in my knees and can't walk . I have swelling in the soles of my feet and palms of my hands and it feels like walking on or holding marbles. As of this week I am now experiencing floating stools and difficulty breathing (I have already had as much for years but the symptoms are so much worse). I don't know what this is but I am taking things into my own hands and have decide d to go gluten free and egg free for a while to see if this helps. My symptoms don't seem to match up with everyone else is exactly, but I am hoping that someone reads this and can help. PLEASE HELP!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hello, and welcome.

Since you say NoDiagnosis, I am making the assumption that these doctors who are postulating celiac disease have, in fact, tested you thoroughly for that?? Yes?? This would include a full celiac panel, and an endoscopy with biopsies. If you have not had these tests run you should keep eating wheat until they have been done. Once you go gluten free the only way these tests can be done is if you resume eating it, for a considerable period, which is often very painful if that is what is causing your problems.

There are over 300 symptoms of celiac disease and (fortunately!) nobody has these all. They come in many different combinations and your symptoms are certainly on the list.

Why don't you tell us what you have been tested for and, if you have had celiac testing, give us the tests, results, and ranges the lab uses -- there are lots of people here who have a very good understanding of the tests. These results can be helpful. :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748

    lortaine
    Newest Member
    lortaine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...