Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thinking Whether To Go Grain Free?

adambryant

By adambryant
in Coping with Celiac Disease

Recommended Posts

adambryant Explorer
adambryant
Posted

Just a few questions. Why do people go grain free and can people with celiac not tolerate them? I know that when I eat gluten free bread and pasta I feel very bloated, compared to potatoes for example.I know I can't tolerate rice so could it be the grains? Should I go grain free? Anyone have any grain free options?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skysmom03 Newbie
Skysmom03
Posted

No people with celiac can have certain grains. The protein in the grain sets off an autoimmune reaction which can make them very sick. Long term exposure can even lead to different types of cancer and other diseases and possible even death. If you do go grain free you need to make sure you take a good vitamin to make up for vitamins lost from not eating grains.

AVR1962 Collaborator
AVR1962
Posted

After over a year off wheat I was still having trouble with inflammation....it was like my body was on fire and I never knew what was going to happen next....it was like my body was still being attacked by something.....so I went completely grain and sugar free. It made a huge huge difference for me. I found when I was completely grain free though I would after a good length of time have to almost binge to get my carbs or I would find myself very tired. Now I allow 1/2 cup grain from time to day, not even every day. I had to find the right balance for me. I do allow some sugar but again very little. I went to juicing, replacing one meal a day with freshly juiced veggies with some fruit and that has helped my energy levels a great deal. So I think it depends on each person and what they are dealing with as to whether grain free is good for you. Grains are important if they are not causing the body issues.

GottaSki Mentor
GottaSki
Posted

For me - removing all grains, dairy, legumes,, nightshades and histamines was essential - my digestive system was destroyed by decades of undiagnosed Celiac Disease.

We are all different - my nutrient levels are all better than ever without these foods. I am actually absorbing vitamins and minerals from mmy food and no longer need supplementation.

IF and this is a big IF - you are not improving after months gluten-free or as in my case are getting worse with strict removal of gluten - I strongly encourage you to look to other high lectin foods.

Hang in there.

adambryant Explorer
adambryant
Posted
  • Author

Thankyou. Do celiacs who go grain free generally go back to grains and are able to tolerate them in the future? And if so how long? I just can tell I feel different after some foods, not just me thinking it!

Skysmom03 Newbie
Skysmom03
Posted

No, Celiacs must follow a Gluten free diet for life. Even if they eat it and feel 'fine', they are still damaging their digestive systems. Gluten is toxic to a celiac!

mushroom Proficient
mushroom
Posted

No, Celiacs must follow a Gluten free diet for life. Even if they eat it and feel 'fine', they are still damaging their digestive systems. Gluten is toxic to a celiac!

I believe Adam was referring to alternate grains, not gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adambryant Explorer
adambryant
Posted
  • Author

Yeah I meant grain equivalents, or for example gluten free bread/pasta..

GottaSki Mentor
GottaSki
Posted

Hi Adam-

For me - I have been grain free for over a year - had major setback during that time - am doing much better this past month so I plan to hold firm on my current diet for at least six more months then I will trial my removed foods VERY slowly - again some can add things back more quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Tarp
      - Tarp replied to Tarp's topic in Related Issues & Disorders
      4

      Celiac related issues

      I thought I had osteoprosis but did not find it on my record. I know I have stenosisof the spine. I also have Sarcoidosis and diabetes.
    2. Tarp
      - Tarp replied to Tarp's topic in Related Issues & Disorders
      4

      Celiac related issues

      I am 64. I have struggled with a combination of diarrhea and constipation most of my life. Yes I have osteoporosis. I have been taken magnesium citrate with calcium and d 3 and zinc. I take b12 and my latest blood work showed it to be high 2000. My other blood work showed low rbc, hemacrit, hemoglobin and Ferrin. My gastroentologist didn’t say anything j...
    3. trents
      - trents replied to Tarp's topic in Related Issues & Disorders
      4

      Celiac related issues

      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries? As you probably know, celiac disease damages the lining...
    4. trents
      - trents replied to Tarp's topic in Related Issues & Disorders
      4

      Celiac related issues

      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries? As you probably know, celiac disease damages the lining...
    5. Tarp
      - Tarp posted a topic in Related Issues & Disorders
      4

      Celiac related issues

      I am at a loss with spine issues. I have had 4 spine surgeries. These were=all before my celiac diagnosis. Currently I am dealing with chest pain arm pain and burning with increased weakness in my legs. I have had bowel incontinence for 6 months. I had a nuclear stress test and heart issues were ruled out. I can not get a doctor to listen to me and diagnose...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,325
    • Most Online (within 30 mins)
      7,748
    masonlcmason1
    Newest Member
    masonlcmason1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Tarp
      Celiac related issues

      By Tarp · Posted

      I thought I had osteoprosis but did not find it on my record.  I know I have stenosisof the spine.  I also have Sarcoidosis and diabetes.
    • Tarp
      Celiac related issues

      By Tarp · Posted

      I am 64.   I have struggled with a combination of diarrhea and constipation most of my life. Yes I have osteoporosis.  I have been taken magnesium citrate with calcium and d 3 and zinc.  I take b12 and my latest blood work showed it to be high 2000. My other blood work showed low rbc, hemacrit, hemoglobin and Ferrin.  My gastroentologist didn’t say anything just told me to go gluten free and check blood in 3 months. I have had 2 lumbar disc surgeries and 2 cervical spine surgeries    
    • trents
      Celiac related issues

      By trents · Posted

      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. Make sure all are gluten free. Costco's Nature Made and Kirkland Signature products are a good choice and reasonably priced.
    • trents
      Celiac related issues

      By trents · Posted

      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. 
    • Tarp
      Celiac related issues

      By Tarp · Posted

      I am at a loss with spine issues. I have had 4 spine surgeries.  These were=all before my celiac diagnosis.  Currently I am dealing with chest pain arm pain and burning with increased weakness in my legs.  I have had bowel incontinence for 6 months.  I had a nuclear stress test and heart issues were ruled out.  I can not get a doctor to listen to me and diagnose me.  I am afraid I will end paralyzed. I had a question of celiac 11 years ago and then was told I did not have it.  Last month it was finally confirmed by biopsy.  
×
×
  • Create New...