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Celiac And Leukocytoclastic Vasculitis

susiq

By susiq
in Related Issues & Disorders

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susiq Newbie
susiq
Posted

I have just been diagnosed with leukocytoclastic vasculitis after an accidentally being glutened. Does anyone else have have this or know of this? Any nformation would be greatly appreciated.

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mommida Enthusiast
mommida
Posted

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)

Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

  • 2 months later...
jhd666 Newbie
jhd666
Posted

I'm a celiac and I'm also sensitive to a lot of other allergens that lurk in processed food.  Ingesting gluten (by mistake, of course!) makes me vomit within about ten minutes but other food items like spices - which often contain food colouring or preservative - usually bring me out in a rash or give me diarrhoea.  I've just come back from a holiday in Malaysia and I have been a little bit lax, as I wanted to be sociable, and other people can be hostile to the "I have food allergies" comments.  I drank some white wine (often contains sodium metabisulphite - a killer for my gut) and I ate some local spicy specialities under persuasion.  Now, a couple of days after arriving home, I have those tell-tale purple dots on my ankles and calves, which look like the vasculitis rash.  Sometimes I get these spots under my instep when I know I have eaten an allergen by mistake.

Some years ago I had a giant aneurysm in my brain - in my right carotid artery - but, as you can see, I did get through it.  My experience tells me there must be a link between the two: celiac disease and vasculitis, in spite of the fact that doctors and specialists look at me like I'm crazy when I suggest this.  I'm going to pay attention to those purple spots and keep off the allergens!

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)
Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

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  • Posts

    • PixieSticks
      Working in a kitchen with gluten?

      By PixieSticks · Posted

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
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      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      Feeling ill

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    • Scott Adams
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