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StephanieL

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Everything posted by StephanieL

  1. StephanieL
    This isn't exactly what they are saying. They suggest ACTUAL gluten introduction at that time. There is no guarantee that gluten is passing from Mom to Baby via breastmilk at any time.
  2. StephanieL
    Dr. Fasano suggest the "4 of 5" rule. Open Original Shared Link
  3. StephanieL
    Just an FYI- Unless it says "Dedicated gluten-free facility" or you call on everything, the "made on/in/shred equipment" is all voluntary labeling. So just because it doesn't say "made on" doesn't mean it isn't. They will most likely say "we use industry standards for cleaning equipment between batches" in many cases.
  4. StephanieL
    There is a group called "ROCK" Raising Our Celiac Kids with locations around the country.
  5. StephanieL
    Red Apple Lipstick is one I know many people use and swear by!
  6. StephanieL
    I know there are dogs for other food related things but I haven't heard of one for gluten yet. We'd still be in the weeds though with allergies, celiac and animal allergies
  7. StephanieL
    I didn't have to pay to just bring it up on google though. Probably easier than signing up.
  8. StephanieL
    Sorry it's not working . If you google the article in the first post you should be able to bring it up. It's from 3 of the leading Celiac Meds Docs so really worth a look.
  9. StephanieL
    This is a great information piece on Celiac in Kids esp, followup care. Sorry, the link won't work. You can google this to bring it up: Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations Open Original Shared Link
  10. StephanieL
    I was at a conference and we were talking about these kinds of tests. Unless there is VERY obvious gluten in something, these tests aren't going to detect hot spots.
  11. StephanieL
    The flu shot can very from year to year and perhaps it's different over The Pond. Open Original Shared Link
  12. StephanieL
    You would know if it was an allergy vs. an intolerance. There are no contraindications for the flu shot with egg allergies. That nurse was misinformed. I was at a conference last week and this specifically came up- there is NO reason someone with allergies can't get anything (besides the Yellow Fever vaccine).
  13. StephanieL
    If she's unwilling to wash then the second option would be a wet wipe (we use Wet-Ones unscented). The detergents and physical action of wiping on the wet one will remove proteins. Again, washing is best but wet-ones are n second option. *this is based on the same principal that it removes peanut butter and oils from hands of those who rubbed...
  14. StephanieL
    Some people with Celiac feel better off of dairy when first diagnosed. UNLESS you have seen a server reaction, there isn't a reason to test for allergies. There are NOT any reliable tests for intolerances. So unless you are having specific issues, you may be better off gluten-free for 6 months to a year to see how you feel and if you think you need to drop...
  15. StephanieL
    lol Yes, yes it is. I don't rely on that-just as a side note but if they were serious about keeping that designation, I would think they would crack the whip to MAKE them own up to it.
  16. StephanieL
    Then perhaps they should pull the Celiac designation
  17. StephanieL
    I though they had and while there was an issue at the beginning, that had fixed it? Wasn't there a threat of legal action over it? Blurg. Now what to do It's become a favorite here.
  18. StephanieL
    Are the Canadian ones made here in the US? I thought they sorted out all this when they first introduced them here.
  19. StephanieL
    If ti says gluten free, I would assume it is. If you had a reaction to it, there are a few things that could be an issue. May have been something else you are. Perhaps you CC'ed with when getting it out. Maybe there was CC at the factory. If you suspect they are not gluten-free, you can get test strips for them. Your reaction, being you have...
  20. StephanieL
    How were the allergies diagnosed? I only ask because it's highly usually to be allergic to it.
  21. StephanieL
    This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't. That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx. We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive...
  22. StephanieL
    Diagnosis for kids is different than adults. Also, there is often a need for a firmly documented diagnosis for many reasons (like for school accommodations and dietary accommodations in school/hospital). To the OP- is it ideal? No but is it the way they need it done. I would call to get on the cancellation list at the GI or have your ped cal as mentioned...
  23. StephanieL
    Sorry, yes. Signs and symptoms.
  24. StephanieL
    We were told not to bother gene testing our younger kids. They share genetics with Big Bro so there's a high chance they will have the genetics. We were told to watch for S&S and get tested every 2-3 years or sooner if there are S&S.
  25. StephanieL
    Custom Probiotics was a game changer for my kiddo. Sent a sample and we were hooked after just 3 days! Pricy up front but worth every penny!
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