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Feeneyja

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Latest Celiac Disease News & Research:

Everything posted by Feeneyja

  1. Feeneyja
    First of all, I am someone who is not celiac diagnosed (tried the gluten challenge but got too sick to do it long enough so the celiac testing is not considered accurate). My daughter, who is 12 now, is also in the same boat. Not celiac diagnosed but gets incredibly sick with lots of neurological symptoms and now hives if she gets glutened. In many ways...
  2. Feeneyja
    And another point about Wheat Zoomer. It tests for the 3 different tTG autoantibodies: ttg2, ttg3, and ttg6. The celiac panel tests for ttg2 autoantibodies. Dr. Hadjivassilou’s research has implicated Ttg6 autoantibodies in neurological disease, and I think I have seen tTG3 in relation to DH. Some very respected researchers (Dr. Marsh, Dr. Hadjivassilou, ...
  3. Feeneyja
    It absolutely DOES test for celiac antibodies. Those tests are scientifically validated and a part of the panel. It also does test for antibodies to other parts of wheat (including gluten). Those tests are being used in research labs as I type. The controversy lies in what exactly those tests mean. High levels of antibodies are technically meaningless...
  4. Feeneyja
    If you look up what Wheat Zoomer tests, it does include the celiac auto-antibodies, but also antibodies to the parts of gluten themselves. Prior to the tests for auto-antibodies, antibodies to gluten were the go to blood test for screening for celiac disease. But it’s not as specific to celiac, so they are no longer done in standard labs in the states (...
  5. Feeneyja
    Really? Do you have a name? I would love a frozen "pizza" we can have right now (FYI, we are grain free because gluten seems to have messed up my daughter's digestion sufficiently so she has to stay on top of chronic SIBO). Edit: Oops. Just saw the link! Thank you!!
  6. Feeneyja
    We make Meatzza! The "Crust" is ground beef. Seasoned ground beef, pressed flat and baked about 30 minutes. Drain grease then add sauce, cheese, toppings. Tastes terrific. Totally holds together and completely grain free! Also freezes and reheats well. Better than almond flour Crust.
  7. Feeneyja
    Seriously? Fell for troll bait. Ugh.
  8. Feeneyja
    As Ennis post confirmed, flavored coffees can contain gluten and many companies share the same line. The statements about shared lines are comepletely voluntary. It is entirely possible that there is cross contamination. Even gluten free foods get recalled periodically. The fact remains that, while many do not react to under 20ppm, there are some...
  9. Feeneyja
    And I believe the OP was just looking for confirmed gluten-free coffee from someone who might have experience. Judgement on the necessity of said request is really not necessary.
  10. Feeneyja
    "Out of the 7 companies I contacted about gluten in the flavored coffees, 3 got back to me saying not to use their products." I want to thank you Ennis for checking this out. It demonstrates a few very important points: - Check it out if you are wondering (I know, who has time??? You just want a recommendation so you can move on). - any time...
  11. Feeneyja
    Geesh! I am not trying to diagnos. I was just adding to the information. I know that some of the folks here posting on this thread have neurological symptoms. My only point is that this CAN be an issue and that small amounts of cc are a problem particularly in those who have neurological symptoms.
  12. Feeneyja
    I have posted this link elsewhere, but it's worth reading. The neurological affects of gluten are not the same process as involved in celiac disease. Cross reactivity of gliadin peptides with Purkinje epitopes in the cerebellum as well as cross reactivity of gliadin antibodies with sinapsin 1 are what is suspected. I have contacted Dr. Hadjivassilou personally...
  13. Feeneyja
    I can tell you that my daughter, while not diagnosed with celiac disease, also has a similar reaction: burning and tingling of arms and legs (usually right side), pain and heaviness across her back, even temporary loss of vision. Gluten, in addition to celiac disease, does have a neurological affect in some. It is thought that the peptides in gluten cross...
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