I have been a diagnosed Celiac for 6 years now. The moment I was diagnosed I have lead a strict gluten free life, I wasn't taking any chances and wanted to feel better. Over the past 6 years I have never intentionally eaten gluten, but there have been times that I have had cross contamination, especially eating out.
Yesterday was quite an experience and I've learned from it and upon trying to research it I found nothing....I'm hoping I'm not the only one, although I wouldn't wish this on anyone.
About a year ago I found a Chinese restaurant that had an owner who's claim to fame was she had found ways to make just about everything on the menu gluten free. Gluten free Chinese food? Yes please!! I ate there 4 times with no reaction....ahh, life is complete!....until yesterday. I ordered the gluten free potstickers and sweet and sour prawns.
About 2 hours later I started feeling really nauseous. The first thing I thought was maybe I got cross contaminated. Then within the hour I told my friend that I needed to go to the emergency room. I had SEVERE middle back pain and upper stomach pain. I was dizzy, extremely nauseous and my lips were burning and tingling. By the time we pulled up to the emergency room I couldn't stop throwing up....it was bad. And the pain was so intense I was told I was whimpering.
They got me in right away and started me on an iv and gave me toradol for the pain and zofran for the vomiting. The doctor wanted to do blood work and an ultrasound because he was concerned it was my gallbladder. Well, everything was fine and it was the gluten, although they couldn't test or confirm it.
It is day 2 and my lips are still tingly and I still have quite a bit of pain and nausea. I'm extremely tired and weak.
I was looking online for people that have had the same or similar reaction and found nothing....am I the only one?
Some things I know have helped me and hopefully they can help others....if you've been cross contaminated or "glutenized" as I call it....chew a handful of vitamin c chewables, it helps. Drink LOTS of water. Stick to a bland diet and NO caffeine for a few days to let your stomach heal. Heating pads help and get lots of rest. And there is an amazing product called GI Response, you can buy it on Amazon. It's expensive but you will thank me later.
I don't know how long it will take to feel back to "normal", but I have sworn off eating out....I'd swear off eating if I could. Being gluten free sucks. But that's what we've been dealt and so we must deal with it the best we can.
I hope that I've helped at least one person.....and if you are unfortunate enough to have the same reaction to gluten as me....know that you aren't alone.