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Bree J

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About Bree J

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  1. I'm not sure, but I have been getting bumps lately too! I think it might just be the heat not letting my skin "cool down" from that initial irritation? But maybe not.
  2. Bree J

    Hard day

    Yep, I got a nice solid panic attack when my brother invited me to have dinner with him on his birthday at a Japanese hibachi restaurant. They have gluten free soy sauce, but it's a shared Grill. That ended up being okay, and he actually sanitized my corner of the grill, and I watched him do it, so that was nice. But I had no idea they would do that for me, so I panicked for a full two hours before going, but I wasn't going to say no to my brother's birthday. I ate before I went, just in case. You are not alone in this. I'm so sorry you have to deal with it, I know how much it sucks. You are so strong!
  3. Eat healthy fats! Nuts Seeds Nut butter Coconut Avacados Salmon / tuna Red meats Cheese
  4. Hi! Im 23 and feel similarly! I tried to get tested for celiac, but the doctors that I had access to did not know how to diagnose it or test it correctly, so I am unable to officially test myself for celiac, but honestly I believe it's possible that I have it. Maybe I'm like you, and I'm just a non-celiac gluten intolerant person, but you know what, that's not JUST anything! Living gluten-free is hard. Living strictly gluten-free is even harder. For years I just ate generally gluten-free, as in not eating noodles and bread, but not worrying about the sauces or seasonings I ate. It wasn't until I actually found this forum and read other people's symptoms and stories that I decided to be even more careful, just like a Celiac person. and even if I'm not a quote-unquote true celiac, eating like one has made me feel loads better. Even if I'm just allergic to gluten, or whatever you want to call it, I have done the work to accept my body as it is. I felt just like you for a really long time, really confused and feeling like I didn't belong anywhere, feeling like I wasn't allowed to say I was a Celiac, but feeling like a joke when I just said I don't eat gluten, just because of the preconceived notions of it in our society lately. I see a licensed therapist for unrelated reasons, but I brought up to her that I had been really struggling with the idea of Whether or not I'm Celiac and whether or not it mattered. The main thing I struggled with for a while is what to say to restaurant staff, people who were hosting dinners, or people at parties that would ask me if I why I'm not eating certain things. long story short I decided that it's okay for me to start with the words I am allergic. Or even it makes me very sick. I was worried that I wasn't allowed to say the word Celiac, and that it would be the only word that would work. But I found that not to be true. I'm a master's student in communication, and I know how important language is. In the past couple months I have found that the word allergy brings just as much attention to a strict diet as the word Celiac does. So that is the one word that has made me feel a little bit more like I belong. Trust me, I have always been worried about what other people think of me. But with the help for my therapist, I have begun to realize that what I feel in my own body, the reactions I get from certain foods in my own body, the price I have to pay in my own body for what I eat or what I can't emanate my food with, that's my own thing. No one will ever understand it, even if they know and understand the words Celiac, no one will ever understand your exact case, your exact feelings, your exact reactions. So who cares if you're not celiac. You still have what I like to think of as a disease. Not that that's a great thing or anything, but it does mean that you have something special about you that you know how to take care of. You are unique. Don't let anyone take that away from you.
  5. I'm not sure if our pain is the same, but there was a time last summer during which I would be in pain any time I ate anything. I've been eating gluten-free for 5 years, So I know it wasn't that. honestly I thought I might have a stomach ulcer, so I went on Google to try and see what I could do to ease the pain from that, since I didn't really want to go to the doctor just to be told To eat carefully. I know they can give you antibiotics or something for actual ulcers, so maybe bring that up at your doctor's appointment. but anyway, after being really careful about eating gentle Foods, I started to feel a little better. I'm not sure if it was an actual ulcer or if it was just intestinal damage from having Celiac and not knowing it back then, But whatever I did to eat Bland Foods helped. the only thing I would definitely suggest, though, is to avoid gluten free crackers. I know regular wheat flour crackers have absorption qualities that are probably good for acidic stomachs, but I think that whatever gluten free flours are in gluten free crackers don't really help. Stick to broth, and make sure you're getting enough protein, those are what can help heal a little bit. This might sound weird but every time I ate steak I felt better. again I'm not sure if this is the same as you, but if you're on a Celiac Forum worried about stomach pain, I'm assuming you're a little familiar with it, so maybe you actually have Celiac or some other Something wrong with your stomach, and the damage is just gotten so bad that anything you eat upsets it. Good luck at the doctor.
  6. I say that's proof enough that gluten or at least wheat hurts your body, and that you shouldn't eat it anymore. If you want, you can do what I did when I first thought I might be gluten intolerant or Celiac, go another 3 weeks without eating any of it, being really careful, and then try a piece of bread or even just two bites like you accidentally had at that dinner. If you feel sick again, you know that's what it is. I'm like you and don't have the means to get an actual biopsy of my intestine. I was able to get blood test, but I took them while I was eating gluten-free, because the doctor didn't tell me I should be eating gluten. So that was pretty much useless. But I know my body, and I know that I feel horrible even when I have a tiny bit of gluten. So I just never eat it. I told restaurants that I either have Celiac or at least an allergy, they seem to react to the word allergy, and usually treat me well and treat it like it's serious. While I won't go into anaphylactic shock if I eat it, I will be sick for days, even if that doesn't mean actually throwing up or anything, it will just generally mess up a lot of systems in my body. I used to be just generally gluten-free, never eating bread or noodles, but always being okay with french fries and sauces and Seasonings, I mean just eating that without checking ingredients. Ever since I learned more about celiac, I started to avoid sauces, seasonings, and french fries and the like unless I knew for sure 100% that they were gluten free. I've been asking restaurants if they use shared fryers or not. Anyway, since I started being even more careful, like someone with celiac, I felt even better. I have way less bloating, I'm more regular, and generally I have more energy. It does take time and some trial-and-error, but I think you can definitely take care of yourself without having to go to a doctor. Maybe don't go around flaunting that you have celiac, but still definitely take care of yourself and tell servers, managers, cooks, even your grandma if she cooks dinner for you, that you have a gluten or wheat allergy, you're not lying. It really does negatively affect your body. So be true to yourself and don't worry about what other people say. I hope this helps.
  7. Bree J

    Does this look like DH?

    I get similar sores. My scalp is also a mess, and it doesn't help that I pick at it... I don't really have an answer for you because my testing wasn't super conclusive either, but I can definitely relate to those pictures. I get tiny ones on my hands a lot.
  8. I am the same. Im 23 and have been gluten free for 5 years, but only 2 months ago i found out it's celiac and not just an intolerance. Since I've been more careful I do feel better, but I get even more anxious now. When my brother texted the family about his birthday dinner at a Hibachi (Japanese) restaurant, I had a full on panic attack because a lot of Asian foods have soy sauce, and everyone's food is made on a shared grill. Instead of spending time getting ready to go out, I cried and googled stuff about Hibachi to try and plan what I was going to do. I called the restaurant when I calmed down a little, and they said they had a gluten free protocol and gluten free soy sauce. Our chef sanitized half of the grill for me and my food. So it was all okay. But very stressful! My biggest tip is to call any restaurant you're about to go to and tell them you have a severe allergy (the best way I've found that servers take it seriously), even ask to speak to the manager. I have general anxiety anyway, so phone calls are hard, but I've been learning to take ownership of my dietary needs, because I finally feel like myself when i do (and am not sick!). Red Robin has a new interactive allergy menu online, I wish every restaurant did! I ordered online for pick up, and they had an option on every item to make it gluten free, or told me it was not safe to eat. I called (like I do) anyway to check, and they told me they have a special gluten free fryer for gluten-free french fry requests. It amazed me! I got a specialty burger in a lettuce wrap and 2 kinds of fries, and felt great! A win for me vs. restaurants lol. I hope you start to find some peace. For now, go out to places still, but just maybe do some research before you go on the fully gluten-free dishes they have without modifications (so you're not worried someone will mess up). Many people have made forums similar to this one for foods at all kinds of restaurants. If anything, don't let anyone make you feel bad about your celiac! It's not your choice, but it is a necessity. People don't make fun of peanut allergies... just whip out that phrase if anyone gives you trouble, lol.
  9. I have a hamster and I kiss his back sometimes and hold him a lot, I just never touch my face til I wash my hands after I handle him. Hamsters are very clean animals, mine does a dust bath every day, sometimes twice. Mine isn't where I sleep but I play with him almost every day, and i'm okay!
  10. Bree J

    To test or not

    I'm kind of in your boat, avoiding gluten makes me feel way better, but idk if I want to get tested. I probably won't because I will not be able to function if I do a gluten challenge. I will just train myself to have the willpower to eat like a celiac.
  11. I don't have much as far as advice, but I want you to know I'm in a similar situation. Although I don't have the means to visit many specialists right now, my (what I truly believe is) celiac causes psoriasis on my scalp and hands. I've been gluten intolerant for 4 years, but I think I've developed celiac, seeing as I am having new symptoms even while opting out of gluten. I think I'm still getting cross contaminants. I also have joint paint, like bad growing pains almost. Not much of a help, but I can relate, so at least you're not alone!
  12. Wow, thank you so much!! This helps a lot. Good community here, glad I found it.
  13. Thank you so much!! I'm going to start today.
  14. Thank you -- I will first try to be 100% gluten free. I've been trying to learn what that means in my free time, but if anyone has a good resource of everything to avoid that would be helpful. Yesterday I opted not to have a gluten-free crust pizza at a restaurant because they don't use separate ovens or certified gluten-free toppings, so I'm starting out good I think, haha. Thanks for the help. Just feeling pretty stupid lately, probably because there are so many symtoms of celiac but not everyone gets all of them, so my brain is telling me "you have, you don't have it" on repeat. I should stop browsing the internet and maybe get a book written by a medical professional.
  15. What's got me thinking I might still have to worry about celiac, even though I've been gluten-free for 4 years: https://scdlifestyle.com/2015/11/the-celiac-disease-diet-why-gluten-free-isnt-working-and-what-to-do-instead/