Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Question On Symptoms


HumanDecency

Recommended Posts

HumanDecency Contributor

So, I have been diagnosed but have been experiencing some strange side effects. And I wanted to see if anyone could relate and maybe offer suggestions on how to alleviate such symptoms.

 

I have been gluten free for 3 weeks now. (At least trying to be. I'm a little more keen on CC now.) I had a pretty bad reaction to what I think was corn pasta the other night but otherwise the symptoms have just been fatigue and nausea.

 

But I have been getting pressure/pulsating feeling on the left side of my head. It's more notable when I lift something heavy or lay on it. It doesn't happen all the time.  Of course it worried me, but urgent care didn't seem to be up in arms about it. I can't get into my doctor and my specialist date is on the 23rd. It's quite worrisome to be so uncertain.  Anyway, so this feeling is funny. Almost like that feeling you get when you turn your head and your neck pops. Occasionally this will lead to intense fatigue and nausea. My arms feel week. My stomach hurts. I am just really wiped out. I feel like I could eat for days but I'm not really hungry (unsure how to really articulate this feeling). 

 

Is this normal for recovery? Or is it more likely that I am being CC or something completely different? If this is normal how do you alleviate such symptoms? Just ride the storm out? 

 

Thanks for your advice.

 

Jesse

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Maybe your sugar is dropping on you.  Check to see if eating some fruit when this happens, even if not hungry, resolves the issue. My hunch is that this is what is happening.  When you adjust your diet, your body needs to adjust to the change.  

 

Good luck with this.

 

Colleen 

HumanDecency Contributor

Maybe your sugar is dropping on you.  Check to see if eating some fruit when this happens, even if not hungry, resolves the issue. My hunch is that this is what is happening.  When you adjust your diet, your body needs to adjust to the change.  

 

Good luck with this.

 

Colleen 

Thanks, I will check that out. I've been trying to be vigilant about sugar intake. Most of the gluten free products I have been finding have a lot of sugar. Maybe I'll go get a blood sugar tester this evening. I have been meaning to do that anyway.

 

Thanks for taking the time out to respond to me. It's vastly appreciated. 

GF Lover Rising Star

Gluten free products usually have a lot more sugar than there gluten equivalents.   You may have inadvertently been eating more sugar then you think, then dropping.  You should try and eat more whole foods rather than just substituting.   This will also help you heal quicker.  

 

Hope this works out for you, we are always here for help.

 

Colleen 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,083
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...