Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Whole Body Stiffness

tigerlily6200

Recommended Posts

tigerlily6200 Rookie
tigerlily6200
Posted

I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dozey Apprentice
Dozey
Posted

I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be.

Hi Tigerlilley

I have a lot of stiffness especially after sitting for any time, I am also quite tense and often have my shoulders up around my ears, and my teeth clenched. I am not diagnosed with Celiac but have had the bloods done this morning. I have hypothyroidism and b12 deficiency. Also getting tested for vit D def. hope things improve for you soon.

Jo

GFreeMO Proficient
GFreeMO
Posted

I have this too.  It helps to get out and walk.  I thought that I had Lupus or RA is was/is so bad sometimes.  It's all just part of celiac. You will be ok.....it takes so much time to heal from this.

pricklypear1971 Community Regular
pricklypear1971
Posted

Celiac and nutritional deficiencies do play a big role, in my experience. However, don't underestimate hypothyroidism's role.

In short, despite being on t3/t4 meds for years and receiving some relief in symptoms - I was not getting adequate absorption. This leads to suboptimal levels if t3/t4, too much rt3, stressed adrenals (I also have steroid damage), and hormone imbalances.

So, I'd look into adrenal and thyroid, and probably hormones more to help relieve those symptoms faster. It's very hard to separate celiac and thyroid. Time helps. I'd advise assuming they're causing as much trouble as Celiac and just start working on them.

  • 2 years later...
etm567 Newbie
etm567
Posted

Mineral and vitamin deficiencies can definitely cause muscle rigidity. But it's so complicated to figure out what specifically is the cause! Vitamin D, calcium, potassium and magnesium all contribute to that, I think. I mean, the lack of those things.

Have you been checked for SIBO (small intestine bacterial overgrowth)?

Almost forgot about your hypothyroidism. That also definitely plays a part, and is by itself can cause low blood calcium, I think.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...