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Dozey

Syptoms Of Glutoning

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Hi all, me again. I finally got my blood test paper work and the only test done for celiac was

Tissur Transglutaminase IgA level. - Negative.

So I am no wiser.

I have been cutting out gluten for a week or so and the gurgling and discomfort have eased.

However, last night I had veg sos roll and quiche, and about 11.30 this morning I began to feel quite ill, sick anf trembly. It has passed now.

Could this be a result of gluten? I have had these episodes in the past when I was eating normally but have been putting it down to the B12 def. i don't think I have had an episode while I was off gluten.

It is so difficult to know what sypmtoms belong to what as I am also vit D def and have just had to incease my thyroxine.

Thanks

Jo

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It could be gluten or it could just be your inflammed body over-reacting to something. If it is a symptom you usually got while eating gluten, I would say that was probably it. I don't know what a veg sos roll is but if it is a processed food it could have wheat - was there soy sauce involved?

 

I used to have symptoms of hypoglycemia before I was diagnosed. I would get quite shakey, weak, and dizzy if I hadn't eaten for 3 or more hours. Could it be something like that?

 

I hope you continue to feel better on the gluten-free diet as you get it to 100% gluten-free. Give yourself time to feel better. it takes the body a while to settle down.

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It could be gluten or it could just be your inflammed body over-reacting to something. If it is a symptom you usually got while eating gluten, I would say that was probably it. I don't know what a veg sos roll is but if it is a processed food it could have wheat - was there soy sauce involved?

I used to have symptoms of hypoglycemia before I was diagnosed. I would get quite shakey, weak, and dizzy if I hadn't eaten for 3 or more hours. Could it be something like that?

I hope you continue to feel better on the gluten-free diet as you get it to 100% gluten-free. Give yourself time to feel better. it takes the body a while to settle down.

Hi nsvmom and thank you for replying. I have had so many syptoms since becoming ill with b12 def last November, it has become really difficult to know what is causing what. The veg sos rolls are quorn based with pastry so I would imagine they aren't gluton free. I know I shouldn't have had it but I am doubting my self diagnosis, with everything else that is going on. I am just sick of feeling ill.

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The tTG IgA test is not the most sensitive test for picking up cases of celiac disease. According to the World Gastroenterology Guidelines for Celiac Disease, it only picks up 75-95% of all celiac cases - it could miss up to 25% of celiacs.

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

As you know, celiac disease can lead to low B12. It is extremely common. It could takes months on the gluten-free diet for that to improve though. If you think you will have a hard time committing to the gluten-free diet, and you need to be 100% committed to get the full health benefits, then you should probably continue eating gluten and get further blood testing or an endoscopic biopsy done. The link above, on page 12, has all of the serologic tests done for celiac disease. The DGP tests are some of the best.

 

There is a good chance you have Non-celiac Gluten Intolerance /Sensitivity (NCGI) in which case there is no blood test that can diagnose it, only a positive reaction to the gluten free diet is diagnostic.  You would need to commit to many months gluten-free to notice all benefits, I would consider 3 months the minimum and 6 months would be better. NCGI can lead to low B12 too.

 

I know it's hard to have a plan of action when you feel badly but you need to make yourself choose a path, be it going gluten-free now or pursuing further testingand then going gluten-free, and commit to that path so you can move towards better health. It is so very hard to get started but once you get some momentum going it gets easier... at least that is what I have found.

 

Hang in there.

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The tTG IgA test is not the most sensitive test for picking up cases of celiac disease. According to the World Gastroenterology Guidelines for Celiac Disease, it only picks up 75-95% of all celiac cases - it could miss up to 25% of celiacs.

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac Disease_long_FINAL.pdf

 

As you know, celiac disease can lead to low B12. It is extremely common. It could takes months on the gluten-free diet for that to improve though. If you think you will have a hard time committing to the gluten-free diet, and you need to be 100% committed to get the full health benefits, then you should probably continue eating gluten and get further blood testing or an endoscopic biopsy done. The link above, on page 12, has all of the serologic tests done for celiac disease. The DGP tests are some of the best.

 

There is a good chance you have Non-celiac Gluten Intolerance /Sensitivity (NCGI) in which case there is no blood test that can diagnose it, only a positive reaction to the gluten free diet is diagnostic.  You would need to commit to many months gluten-free to notice all benefits, I would consider 3 months the minimum and 6 months would be better. NCGI can lead to low B12 too.

 

I know it's hard to have a plan of action when you feel badly but you need to make yourself choose a path, be it going gluten-free now or pursuing further testingand then going gluten-free, and commit to that path so you can move towards better health. It is so very hard to get started but once you get some momentum going it gets easier... at least that is what I have found.

 

Hang in there.

Thank you so much for all the information. I haven't decided what I want to do yet.

Jo

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