Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What To Eat?

MChase

Recommended Posts

MChase Apprentice
MChase
Posted

I am so frustrated, discouraged, and exhausted when trying to find what to eat.  I have had digestive issues all my life.  I get really bad attacks (feels like labor pains) every couple of months.  I have D multiple times a day.  Some days are worse than others.  But this past 6 weeks or so has been horrible.  I can barely get out of bed.  I have no energy (worse than normal).  I have to choose what I am going to do that day (i.e.  if I take a bath, will I have energy to make dinner for the family??).  

 

I am in the midst of seeing a GI (for the first time last week) and have an endoscopy and colonoscopy scheduled for next week.  But, in the meantime, I'm told to eat "normal" so my tests aren't skewed. However, eating "normal" leaves me in such pain and agony.  I am not sure how much more I can take.  For instance, yesterday, I had errands to run.  I didn't eat so I would be able to leave the house (that goodness I don't work).  I was starving, so I grabbed a fish sandwich from McDonalds.(I haven't had McDonalds in about 4 months).  I thought I was fine, no immediate reaction other than some mild cramping.  But, 2 hours later, Oh it was horrible.  The cramps, the trips to the bathroom (4 in the first 40 minutes, about 8 or 9 in 2 hours).  Okay, that was done.  Move on to today.  I made me 2 eggs and OJ.  I was fine.  Hours later, I made me a bagel with some cream cheese (have to continue to eat gluten, right?).  The cramps began within 30 minutes.  And once again, many trips to the bathroom, cramps, icky feeling.  While cooking dinner, I had to take things off of the stove so I could run to the bathroom, then try to resume cooking when I got back.  Needless to say, I couldn't eat dinner because I still felt so bad from earlier.  I ended up leaving and going to lie in bed for about 2 hours (not sleeping) and multiple trips to the bathroom.  I was in tears, partly because of the pain and partly because of being so overwhelmed.  My husband asked why I even ate a bagel if I knew what it was going to do.  But, I don't want skewed results if I do have Celiac.  

 

I know there is no solution to this.  I just needed to tell someone.  I just need this to be over soon.  My body and mind cannot take much more of this.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

You might not need to eat as much gluten as you think.

Open Original Shared Link

MChase Apprentice
MChase
Posted
  • Author

I am so hungry, but afraid to eat anything.  I am overweight.  I have struggled with my weight since about 8 or 9 years old (that seems to be when most of my problems starting occurring).  But this past 6 weeks, I have lost about 12 lbs without trying, without exercising.  Normally to lose 12 lbs I have to write everything I eat down and exercise like a maniac. 

MChase Apprentice
MChase
Posted
  • Author

You might not need to eat as much gluten as you think.

Open Original Shared Link

Oh thank you.  I might be able to handle that.  

w8in4dave Community Regular
w8in4dave
Posted

Ohhh my!! I feel so much for you!! It sure brings back memories!! Not because I was eating Gluten for a test, just because I was eating Gluten and had no clue what was wrong with me!! Ohh the trips to the potty and no energy !! I used to get real shaky after a trip to the bathroom. It was like it wiped out every fiber of energy I had or could have and more!! I know what your going thru!! I cannot imagine going thru it again! good luck sweetie!! Huggzz! 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,080
    • Most Online (within 30 mins)
      10,442
    AdrianJ
    Newest Member
    AdrianJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...