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Skin Biopsy For Dh

answerseeker

By answerseeker
in Dermatitis Herpetiformis

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squirmingitch Veteran
squirmingitch
Posted

I agree with the others. She HAS to keep eating gluten until the biopsy & Prickly said it right. 

 

Some info. on the dh biopsy & you should print it out & take it to the derm especially if you insist on seeing the derm you just saw who gave you bad information.

 

http://www.celiac.ni...Dermatitis.aspx  forget what they say about it's location on the body --- that's bunk --- we who have it can tell you it appears anywhere it darn well pleases & while it does appear where they say that's not the ONLY places it appears & not necessarily the first or most frequent places. You might want to print a copy & take it to the derm.
 
 
 
 
 
 
 
And the rash does not ALWAYS present as water filled blisters --- that happens when you've got it BAD. 
Open Original Shared Link
 
The use of either topical or oral steroids within 2 months prior to the biopsy will make the biopsy negative whether it truly is negative or not.
 
Also, one MUST be have been & continue to be eating a full gluten diet or outhe biopsy will turn up negative. If one is "gluten light" the biopsy will turn up negative. You can't just eat a few crackers the day or for a few days before the biopsy --- that will not work. YOU MUST BE EATING A FULL GLUTEN DIET.
 
Open Original Shared Link
 
These types of skin samples are collected by performing a biopsy, which involves incising tiny portions of unaffected skin positioned immediately next to reddened or blistered areas.
 
 
Open Original Shared Link
 
Dermatitis herpetiformis is only
diagnosed and confirmed by a
dermatologist obtaining a slight
skin biopsy from uninvolved
skin adjacent to blisters or
erosions (1, 3). Other forms of
dermatitis can mimic dermatitis
herpetiformis necessitating
skin biopsy for correct
diagnosis (4).
 
 
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A skin sample is taken from the area next to a lesion and a fluorescent dye is used to look for the presence of Immunoglobulin A (IgA) deposits that appear in a granular pattern. or  Skin biopsies of people with DH are almost always positive for this granular IgA pattern.
 
 
Open Original Shared Link
 
DH is diagnosed by a skin biopsy, which involves removing a tiny piece of skin near the rash and testing it for the IgA antibody
 
Labs & biopsy for dh:
Open Original Shared Link
 
DH confusion with linear IgA bullous dermatosis
Open Original Shared Link
 
Symptoms of celiac disease
Open Original Shared Link
 
Be sure to read all 3 of these links & print them out to take to the derm:
Open Original Shared Link
 
Open Original Shared Link
 
Open Original Shared Link
 
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DHLady Newbie
DHLady
Posted

Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time.  It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated!  Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change.  :)

kareng Grand Master
kareng
Posted

Hi there!

I was diagnosed with DH in the fall of 2010.

I just woke up with it one day.

I have been on 100 mg of Dapsone daily, since that time. It controlled the painful rashes beautifully.

As of 1/1/14; I have stopped taking Dapsone (cold turkey) and began a gluten-free diet.

I do not suffer any of the GI symptoms associated with Celiac.

My dermatologist & primary care physician told me I had to make the change, as my red blood cells were damaged resuling in a low oxygen level as a result of taking the medication.

I know I have a long painful road ahead of me; which is why I prolonged changing my diet and getting off the Rx.

Any suggestions like the above would be greatly appreciated! Eating on the go, meal ideas, safe costmetics, soaps and lotions, etc.

I am a very busy homemaker, wife and mother of three very active children.

I am not taking any other Rx medications and do not have any other known allergies.

I do take a daily low dose aspirin.

Looking for support in tackling this lifestyle change. :)

That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

DHLady Newbie
DHLady
Posted

That's horrible! You were diagnosed with Celiac Disease in 2010 but no one told you the only cure is to go gluten-free until now? Sounds like malpractice to me.

Anyway, read around the forum . In the coping section is a Newbie thread that could be helpful.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

My apologies!

From day 1, I knew that the only cure for DH was to go gluten free.

I simply did not want to make the change and took the Dapsone, using it as a band-aid.

It worked like a dream for me!

I have just been prompted to pursue the gluten free diet due to side effects of the Dapsone.

Thanks for you thoughts.

squirmingitch Veteran
squirmingitch
Posted

This link might help you

https://www.celiac.com/forums/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/

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