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To Endoscopy Or Not To Endoscopy?

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Hi everyone!


I did my second TTG-IgA test in 12 months, and it was overwhelmingly negative. Thyroid levels are going ok too, maybe a bit on the higher side but I am wary of increasing my dose due to an overmedication episode last year (when I was overmedicated, my FT4 was at 19 so am way too sensitive to even a slightly higher FT4 level). So the TTG-IgA came back negative, and my doctor told me it is an exceptionally sensitive blood test so I probably do not have celiac. A link to my results: http://imgur.com/hqkeLXM


The TTG-IgA cost around $60 (but I ended up only having to pay $12 thanks to school insurance) but I am not sure if ordering other celiac tests would be worth it. Canadians: Is it possible to order the other tests without ordering the TTG-IgA again? Is it worth pushing for an endoscopy? I doubt it would provide any answers. I have had tarry black stool, so the doctor told me to do another stool test (that's about 4 in a year which is always fun to collect haha) but an August colonoscopy only revealed mild inflammation at the terminal ileum.


I feel horrible but I've come to accept this IBS/SIBO/Hashi's existence at the moment. Joint pain, crippling anxiety, chronic diarrhea has been the name of the game for at least a year. I have given up wheat for a few weeks but I always come back to it, and even when I'm not eating wheat, I don't give too much thought to cross-contamination. I just feel so upset about all of this. The answers are not very simple, I'm afraid.

Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)


Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13


-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum

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Celiac.com Sponsor (A8):

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If you have not had one, I'd consider it. If you want answers, you need to look under every rock. 

I had 2 EGDs, a colonoscopy, MRI, CT, Ultrasound, and tons of blood tests before I was DX'd.

Abdominal Pain/GI symptoms started= ~01/02/2014

Gallbladder out= 02/20/14

tTG IgA Postive= 03/21/14

DX via Biopsy (Marsh 3b)= 04/21/14

Celiac Antibodies within Normal range(Gluten free diet)= 10/23/2014

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