Jump to content
  • Sign Up
lisalgreer

Buccal Swab Results: Any Other Double Dq1S Out There? Thoughts?

Rate this topic

Recommended Posts

Hi, all!

 

I finally bit the bullet and did the Enterolab buccal swab. Here are my results:

 

HLA-DQB1 Molecular analysis, Allele 1      0501   

HLA-DQB1 Molecular analysis, Allele 2      0602   

Serologic equivalent: HLA-DQ   1,1  (Subtype 5,6)

 

So, I have two copies of DQ 1. That supposedly can make immunologic responses stronger and can lead to gluten ataxia. Anyone have experience with this? I am pretty sure I have a response to gluten, and my bloodwork looked better off of it. Any other double DQ1s out there? What are your gluten responses? I have struggled with total fatigue, repeated UTIs and kidney problems, depression, huge weight gain, etc.

 

I would love some feedback/opinions. I am thinking this means enough for me to avoid gluten totally?

Share this post


Link to post
Share on other sites

So you were negative for the celiac genes? DQ2 and 8?

Have you had any celiac blood tests? Endoscopy?

Negative for DQ2 and DQ8. Celiac blood tests have all been negative. Haven't gotten an endoscopy yet, but I am going to try to over the next month or so. At this point, not sure I need one. The results and the journal articles I'm reading about Double DQ1 and my family history convince me to stay away from it for good.

Share this post


Link to post
Share on other sites

^That, exactly.

 

The media has somehow painted a picture that everything is black and white, either you have celiac or gluten free is a fad diet and you can go eat pizza and bagels without fear. Don't be afraid to go gluten-free, even if you don't have celiac! :)

 

You mentioned gluten ataxia. Have you had a history of neurological issues with gluten or are you worried that you may develop them in the future?

 

I'm strictly gluten free despite lack of diagnosis, due to neurological complications from gluten. The risk of having a stroke is concerning enough to me, that I'm quite strict in my gluten-free diet.

Share this post


Link to post
Share on other sites

Well, I have a sibling with MS, diagnosed before age 30, and I have had some strange speech stuff, lack of balance, etc. Also, I have suffered with depression, OCD, anxiety on and off for years. I also have a lot of other symptoms like malabsorption. And I have one autistic daughter and now a son being tested for neuromuscular issues. Both of my kids have DQ1, obviously, soooo.

 

Yeah, I think it's all related, and I'm better off of gluten. I have the baby off of it too for now.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...