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Hello I'm knew here and a very confused mother of a 6 yr old boy who recently was being followed by a Pediatric Rheumatologist due to joint pain and inflammation. He was tested for juvenile Arthritis which all came back negative but during those tests they ran a IgA blood test in his and it came back at 49.5. He was then referred on to a GI doctor at sicks kids hospital  were a biopsy was booked and done. The doctor treating him was on vacation and so another doctor on his team did the procedure and only took 3 samples all which came back negative. Our doctor would of preferred a min of 6 he stated. Our GI specialist was ready to confirm a diagnosis of celiac disease just on the IgA level alone but gave us the option to repeat the blood work, We choose to do that due to us having a very difficult time expecting the diagnosis. We just got the results today of the repeated blood work, this was given to us over the phone by the receptionist in his office. She called to tell us the doctor said my sons levels were with in normal range. But she didn't mention IgA she mentioned that it was a TTG test which was at 2.0 I believe she said. is the same thing as the IgA test? and what would of made the initial IgA test so high at 45.9 which  we were told was much higher then normal and that if it was lab error or a false positive it would of only been by a few points, not as high as my sons was. He stated false positives are not values that are double normal values. The receptionist said we are good and there is no indications of Celiac disease so continue on regular diet. I was so happy at that moment but as the day as went on I now have all these questions. We do go back to see the doctor in 8 mths but not sure I can wait that long to have my questions answered. I would love for all this to be true that he does not have celiac disease but at the same time I keep wondering if not Celiac then why else would the IgA level be so high and why didn't that get retested this time around and only the TTG when we requested the IgA do be re done so we could see if it was a false positive for our own sake as parents before we subjected our son to such a difficult lifestyle change. Any advice would help me please. He has always been on a full regular diet during all the testing and never started a gluten-free diet. His issues are mild which includes occasional constipation and diarrhea, irritability and joint pain and inflammations. 

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The TT IgA is the test for Celiac disease.  If the IgA they ran at first was just a total IgA, that is a test for immune issues and the 49.5 would depend on the range but it could be low or the low side of normal  The TT IgA is the test they should have done to start with.  I would call the dr's back and get copies of the actual lab reports so you can see them and what they actually tested, along with the lab range.

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