Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

beelzebubble

Pernicious Anemia

Rate this topic

Recommended Posts

hi all,

so, i wrote this post a while ago

my post

and seem to be having some good results with some really powerfull b vitamins. i've started to do some research because of this, and one of the things that came up was pernicious anemia. i found this to be especially interesting because i've been having problems with my tongue lately. i kept complaining to my hubby that the sides and tip of my tongue felt irritated and sore. it almost felt like i had sores there. so, i looked at it in the mirror and the sides of my tongue are almost completely bald. there are no tastebuds on it at all. i KNOW i had tastebuds at one point. or, at least, i'm pretty sure. i looked at my hubby's tongue, and my sister's, and there is a definite difference between their tongues and mine. i was shocked later, when i came across a picture of the tongue of someone who has pernicious anemia. there's was much more pronounced, covering their whole tongue, but i definitely noticed a distinct similarity. it's almost as if i'm losing my tastebuds from the outside in.

i'm wondering if my situation resonates with anyone here, and if they had anything similar happen with their tongue? i would especially like to hear from someone who has pernicious anemia. it runs strongly in my family (my maternal grandfather has it, and my sister had it), and i know it's linked to celiac and thyroid disease, both of which i have. i'd really like to get a handle on this before i see the doctor this week. i really hate them and would love to be prepared for whatever they might throw at me (emotionally prepared, i mean).

thanks

Share this post


Link to post
Share on other sites
hi all,

so, i wrote this post a while ago

my post

and seem to be having some good results with some really powerfull b vitamins.  i've started to do some research because of this, and one of the things that came up was pernicious anemia.  i found this to be especially interesting because i've been having problems with my tongue lately.  i kept complaining to my hubby that the sides and tip of my tongue felt irritated and sore.  it almost felt like i had sores there.  so, i looked at it in the mirror and the sides of my tongue are almost completely bald.  there are no tastebuds on it at all.  i KNOW i had tastebuds at one point.  or, at least, i'm pretty sure.  i looked at my hubby's tongue, and my sister's, and there is a definite difference between their tongues and mine.  i was shocked later, when i came across a picture of the tongue of someone who has pernicious anemia.  there's was much more pronounced, covering their whole tongue, but i definitely noticed a distinct similarity.  it's almost as if i'm losing my tastebuds from the outside in.

i'm wondering if my situation resonates with anyone here, and if they had anything similar happen with their tongue?  i would especially like to hear from someone who has pernicious anemia.  it runs strongly in my family (my maternal grandfather has it, and my sister had it), and i know it's linked to celiac and thyroid disease, both of which i have.  i'd really like to get a handle on this before i see the doctor this week.  i really hate them and would love to be prepared for whatever they might throw at me (emotionally prepared, i mean).

thanks

<{POST_SNAPBACK}>

My Mom was misdiagnosed with pernicious anemia many years ago when she actually had the same thing I did - severe deficencies because of the malabsorbtion from celiac. What you are referring to with your tongue is most likely 'geographic tongue' and while startling is likely due to vitamin deficiencies. You may want to get some sublingual B12 tablets. These should help your symptoms and they are absorbed under the tongue which is a big benefit. True pernicious anemia is caused by the lack of something called intrinsic factor which is released by the body and is needed to utilize the B12. The treatment for this would be the same as for the malapsorption induced low B12 levels so either way the sublingual B12 will help, just check to be sure it is gluten free. As with anything if the problem is troublesome please make sure to have your doctor take a look but get some B12 while you wait for your appointment.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...