Should I Fight For A Nutritionist At This Point?

[bakergirl90]

I was diagnosed with Celiac in July. I got a referall from my GI doctor back in February for a nutritionist/dietician because I was still having problems and of course it was denied because apparently people with Celiac disease are just supposed to figure it out on their own. 

 

I was planning on fighting it, but have been feeling better now, and learning more about what I should and shouldn't eat. I never got around to writing back to the denial because I have been so busy with my at home business. I don't know if I should try and fight it still or just move on, because I feel like by the time I even get to see one, I will have already figured it out more and be feeling even better, it will be pointless right?

 

I just feel like it shouldn't have been denied in the first place!! 

Also it looks like based off of other people's experiences, that even if you get a nutritionist/dietician they most of the time do not even know how to help someone with Celiac! I feel like I will probably know more about it than they do. 

Am I ignorant to be thinking this way? Or should I try and fight for something I may not even need anymore. If only I could have just gotten the help when I NEEDED it!! 
 

So frustrated.

 

 

[cyclinglady]

I would stop fretting over it.

Your best bet is to keep on top of celiac disease research, use this forum for questions and support, maybe find a local support group, and get on with your life.

Insurance is going to deny you for many things over the course of your life. Some things are worth fighting for, but this issue is not. Most registered dieticians are not experts in avoiding gluten. You can see that from what other forum members have posted.

Even if you had gone, chances are you still would have made plenty of mistakes. Who can think clearly when you are first diagnosed? You are sick! Going gluten free has a very steep learning curve. You have come this far, you probably have got it down. If you need help, just ask! We are here for you!

Hope your business is going well!

[StClair]

I was referred to a nutritionist and did not receive any information I did not already know. I kept the appointment because I hoped that I would get some help working an acid reflux and a non-gluten diet together without continuing to lose weight, but no help. Online research has been my chief source of info. Forums like this are great. Good luck!

[notme]

nah.  pick your battles.  chances are, you would have had to wait on an appointment, anyway.  mine was two weeks after my dx (congratulations, you have celiac, eat gluten free, have a nice day)  - i was, like:  what am i supposed to eat in the mean time????  so, i did a ton of research and asked around here.  by the time my appointment came around, i cancelled it.  in hindsight, i probably already knew more than they could have taught me (and, i have heard some of them have no clue at all)  save your time and trouble.  really and truly, the only time i suppose you would need a dietitian/nutritionist would be in the first few days.  like:  congratulations, you have celiac, eat gluten free, GO SEE THE DIETITIAN (in an hour, go eat your last gluten meal, lolz) if you could see them in an immediate time frame, say, the same day or the next day, that would be helpful maybe.  THEN, have a nice day.  and you might  because you would know what to eat

 

when you get dx'd with type 1 diabetes, they don't leave you flailing around for 2 weeks, though,  so i see your point....