Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Intolerance And Cross-Contamination


Kazie

Recommended Posts

Kazie Newbie

Hi everyone,

 

I am certain someone has brought up a similar question before, :mellow: but there we go anyway:

 

My GP has recently advised me to try out a gluten-free diet, since he firmly believes I am intolerant. (I've had something similar to a rosacea for over 10 years.) As I get into the third week out of six of a gluten-free diet, my skin has massively improved but I am bothered about one thing...

 

 What about cross-contamination?

 

My general view of my highly probable intolerance was to still eat some products that "may contain traces of gluten", as it's stated on the package. Yet, I fear I should avoid these products too. Here's why:

I am often experiencing the pins and needles syndrome on my forearms or my feet. (I doubt it comes from any physical activity, since I'm only cycling to work and usually don't experience such things on a regular jogging.)

Recently I am often extremely thirsty or have a sore throat in the morning and the evening. (This might be due to summer and air conditioning though.)

 

I'm asking your advice here. Should I also ban these potentially unhealthy products of my diet for the remaining three-four weeks of this test or not? Have any of you experiences something similar with regard to a gluten intolerance?

 

Thanks to you all  :) and thanks for reading !


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Did your doctor test you for Celiac first?  

Kazie Newbie

He did an electromagnetic resonance test in the first place and was very positive about gluten. I am now waiting for further test results.

Also I went to an allergologist a couple of years ago, but he refused to test me, saying I would know if I had the coeliac disease...

kareng Grand Master

That's too bad.  If they are so certain its a gluten issue, you would think they would do an actual medical Celiac test.  Ugh!  Knowing if you have Celiac might help you answer your questions about diet and cc.  However, you do need to be consuming gluten for the tests to be accurate.

kareng Grand Master

He did an electromagnetic resonance test in the first place and was very positive about gluten. I am now waiting for further test results.

Also I went to an allergologist a couple of years ago, but he refused to test me, saying I would know if I had the coeliac disease...

 

Wait... this just sank in, something odd is going on -

How does an MRI tell you you have an issue with gluten?  What did they scan?  I think you should go back and ask some more questions. LIke -   what were they really looking for?  why did they stop looking? Why won't they do a simple Celiac blood test?

Kazie Newbie

Wait... this just sank in, something odd is going on -

How does an MRI tell you you have an issue with gluten?  What did they scan?  I think you should go back and ask some more questions. LIke -   what were they really looking for?  why did they stop looking? Why won't they do a simple Celiac blood test?

 

Hi Kareng. I didn't take an MRI, my doctor did an electro-magnetic resonance test, about which you can read more up here: Open Original Shared Link

 

I think that each country has a different way to approach celiac disease: Whilst in Switzerland I went to many doctors (dermatologues, alergologists, etc.) none ever mentioned the possibility of a gluten intolerance or they simply refused to test me when I asked them to do so. Now I've been living in France for a year and they prefer that the patient makes some efforts, in some ways taking a diet for six weeks, to better understand the condition. Of course, I will take more conclusive tests if I the first ones are conclusive.

 

I'm a female, 23 years old, 121 pounds for 5 ft. 4.96. As such, healthy as a horse, but some latent "condition" has been affecting me for years and no doctor was able to point it down to something up to now.

 

I hope this might help you to follow my point  :)

Hoos Newbie

If your physician prefers that you try a gluten-free diet before (or instead of) performing an actual test for Celiac disease or gluten intolerance, I would definitely avoid all gluten - even trace amounts.  People can be sensitive to and react to very minute amounts of gluten. Cross-contamination can be a source of gluten, too.

 

Good luck and welcome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...