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Monica V

Help, Daughter's Ttg Is 214.3 After Going Gluten-Free 10 Months Ago?!

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Our 7 yr old daughter was diagnosed with Celiac last August.. TTG was 135, had a Biopsy in October to confirm Celiac. Started Gluten Free diet after Biopsy, did all the recommended instructions given...with guidance from a close friend who has Celiac, as well as one of her twins. She had follow up blood work last week of her TTG only. Well I received a call today that her TTG is now 214.3!! Any one else had this issue of elevated TTG after diagnosis? Could something else be going on? Any help/ideas?? She will meet with her Pediatric Gastro Dr in 2 weeks.

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Have her symptoms subsided with the gluten-free diet?  If so, then she probably isn't getting gluten in her diet....unless she was asymptomatic to begin with.

 

When rechecking antibodies after starting the gluten-free diet, docs need to do both the DGP and tTg.  The tTg only checks for tissue damage and not dietary compliance.  This is a huge mistake they make a lot and people end up being told they are screwing up their diet when they may be tripping for another autoimmune disease.  I would insist on the DGP to see what that is and also have them do additional testing for other AI diseases that occur with frequency along with Celiac.  Hashi's thyroid disease, RA, Sjogren's Syndrome and Type 1 diabetes, to name some of them.  These are all blood work tests so not that bad to undergo.

 

Good luck!

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Ditto what Gemini stated!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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