Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Need Help With Food Allergy Results

VHDude78

Recommended Posts

VHDude78 Newbie
VHDude78
Posted

Hello everyone. I've been battling issues for 5-6 months. . A lot of stiffness in my muscles, tingling/restless legs, burning eyes, mirgraines, stiffness/burning in neck, dizziness when working out,  Right leg ALWAYS stiff, Arms feel heavy and tire easily  balance issues, right eye is dry when I wake up... you name it. I'm seeing I saw a rheumatologist last week and ran a complete panel of blood for autoimmune and vitamin deficiencies. I also got a food allergy test back from my chiropractor. I was hoping to see a high intolerance. for gluten...  :angry:..but it was  very low. Along with all dairy products... bery low. You would think those symptoms would point to spine...MRI's of neck and lumbar normal. MRI of brain normal. So here's my question..has anyone received a food allergy test and came back very low (VL) for gluten or dairy but still had a bad allergic reaction to it?

 

I went out Friday and Saturday night. Friday night I had both gluten and dairy...felt ok the next day. I went to workout.. felt a little dizzy..but ok. That night I went out had a burger with cheese and fries with some Jack Daniels..then boom...my arms felt stiff...fingers felt numb.. wrists felt numb. That night it felt like I had a warm..buzzing..burning sensation in my back, shoulders, and legs.  Yesterday I woke up and felt god awful. Dizzy...unbalanced.. burning in my thoracic muscles (went away a couple about an hour after waking), my head seemed to shake when rotating. It was strange. I felt tired as well. Today I feel better but not great. Eyes feel like their burning..headache..balance is poor. So obviously..something funny is going on. I was hoping it was gluten...but after that food allergy test..I'm not sure if it is :unsure: . Any advice is appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Dude,

 

I won't even get into the food allergy test accuracy given by a chiropractor,  but seriously, Dude, celiac disease is an autoimmune disorder not a food allergy.  Allergy tests are for allergies!  You can have a gluten intolerance and have a lactose intolerance (lacking enzymes to help break down milk lactose sugars) but that is not the same as a wheat allergy or a milk allergy (milk proteins like casein).  By the way, you can have both (for other readers). 

 

 

This is a celiac disease forum.  Most members have issues with gluten or someone in their family has issues.  We can not diagnose you over the internet.  That would be stupid and dangerous.  What we can do is to help you at least rule out celiac disease.  We have members who have gluten ataxia which is fairly new in the medical world so many doctors are not aware of it.  Heck, many still think that just malnourished children get celiac disease.  (Sorry, about digressing....)  Those celiac.com members who have "MS Like" symptoms have found that it was related to celiac disease.  Instead of affecting the gut or skin it attacks the nervous system.

 

Hopefully, the rhuematologist ordered a celiac disease panel!  Keep us posted on the results.  

 

I wish you well.   

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...