Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

IgA deficiency

Thrillrose

Recommended Posts

Thrillrose Rookie
Thrillrose
Posted

Hello, 

Two of my children have been diagnosed with coeliac disease. I was tested as well and my TT IgA and deamidated gliadin were both normal but the IgA was deficient. 

My dr said that doesn't mean much. But then my sister was tested and her result was the same as mine! Her dr told her to cut out gluten as she obviously has a reaction to it. 

And then of course I start googling and find out that her dr seems to be correct. And that if we don't cut out gluten now, coeliac disease may develop. 

Does anyone know any more about this??

 

thanks 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

If you are iga deficient, then any of the iGA-based celiac tests (e.g. DGP Iga or TTg iga) are invalid.  Your doctor can order other celiac antibody tests: EMA or the tTG IgG or DGP IGG).  It sounds like your doctor only ordered then iga versions.  Not good, in your case because of your igA defciency.  

Open Original Shared Link

Welcome to the forum!  

 

 

  • 2 weeks later...
Nolev Newbie
Nolev
Posted

Totally agree with cyclinglady. I am IgA deficient as well. Scores a healthy zero on the IgA based tests - false negative as it turns out. Finally got the TTG-IgG version and voila I broke the test - really. >15 was positive for celiac and I had >250!! IgA deficiency is genetic. You need to follow this chart and you can see clearly what tests you need. Good luck. Open Original Shared Link

Nolev Newbie
Nolev
Posted

Oh and let me clarify - based on the tests you say you had you only know you are IgA deficient. You have no information on your celiac diagnosis until you take the IgG versions. Then you will know if you likely have celiac or not. Next step would be endoscopy. If you have celiac, you need to be gluten-free for life. You don't develop celiac by eating gluten. You simply get much much worse and proceed to damage your intestines and put yourself at risk for other diseases such as lymphoma and diabetes. You would already have celiac if the TTG-IgG test comes back positive, if that makes sense. Then the gluten-free diet reverses the symptoms. Hope that helps clarify 

Thrillrose Rookie
Thrillrose
Posted
  • Author

Great info! Thanks so much. 

Irene Joanne Explorer
Irene Joanne
Posted

I am deficient in IGA- thankfully the lab that processed my lab work- also did the IgG blood work. This was positive as well as the biopsy. 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442
    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...